incapacitating pelvic pain with no end in sight
From: International Adhesions Society (tracy.joslin@adhesions.org)
Wed Sep 15 22:34:54 2004
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]On Behalf Of
Tammy Taber
Sent: Wednesday, September 15, 2004 2:22 PM
Subject: Re: incapacitating pelvic pain with no end in sight
Hello, my name is Tammy and I am a long time
adhesions sufferer. My story is posted on the
adhesions 'quilt' under Tammy Lynn Taber.
I am not a doctor nor do I ever want to be,
but when it comes to adhesions I often feel
like I know this disorder inside out. I'm
reading your email, you described your pain
symptoms and complications, it sounds like
you might be suffering from the painful
disorders of adhesions.
So my first questions is to determine if
and where you have a source for the adhesions
to be coming from. Since adhesions are
usually due to invasive surgeries I have to
ask, have you ever had an abdominal operation?
Gallbladder? Laparoscope procedures? I assume
you are female? If so do you have you female
organs? Have you ever had any babies? If so
how did that go?
I have been a member of the IAS, the adhesions
society that you posted your message at, since
2001, I was once the new kid on the block and
people on this site welcomed me in and helped me
to learn to cope and find hope. Now I am one of
the old-timers and I am here to help in anyway I
can. If you want to contact me confidentially
you can write to me directly at tammytl@msn.com
or you can post your message to the IAS site,
most of those come to my email box and I try to
view and contact new members as often as I can.
I can help you better if I know more about you,
so let me know if there are any specific questions
I might be able to offer you my point of view, but
remember I am not a doctor. So as far as the
doctors go, it might be helpful to look up as much
information as possible on adhesions on the internet
and take what you find relates to you to the doctor
and have the review your material and then you,
hopefully, will find the doctor to be more open
minded to you and your needs.
Keep in mind that there are no tests such as x-rays,
ultrasounds or MRIs that can 'see' adhesions' these
tests are helpful in making sure all the internal
organs are in their proper places and that the
bowels are not bound or kinked but these tests are
not good for the verification that adhesions do or
do not exist within your body. Additional operations
that are not absolutely necessary are not helpful, in
fact, if you are already prone to adhesions, additional
operations will only make your condition worse.
Through a Laporoscopy the doctors can see adhesions
because they are entering the body. However, this
procedure is very risky, one, because when they go in
they might end up having to push through something
and there is no way for the surgeon to determine if
they are going to push through scar tissue or a
vital organ. Also, even though the procedure uses
very small instruments, it is still an invasion to
the body and it can cause addition adhesions and
more pain to the patient. Those are just a couple
of things I thought you should know and be able to
think about as you go about collecting information.
I wish you the best and I hope something can be
done to help you. Oh one more thing, look up
SprayGel, spelled just like that, it is manufactured
by Confluent Inc. This product is undergoing
clinical trial studies and if it is approved by
the FDA for use in the USA then there might be
an end to the pain and suffering of adhesions
in our near future.
Pain Free Hugs and Best Wishes to You and Yours,
Tammy Lynn
Sent: Tuesday, September 14, 2004 11:49 AM
Sender: hmuich@yahoo.com
Subject: incapacitating pelvic pain with no end in sight
I am a Medic and do not understand why doctors do not listen to the
patient. I have been having the chronic pain off and on going on a
couple of years now. The pain is in my pelvis, mostly on the right(now
on the left as well), radiates to my back, and is incapacitating. I
almost passed out from it a week ago. Within the last two months, I
have been unsuccessful in ignoring the pain.
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