Help Me - To Karen
From: International Adhesions Society (tracy.joslin@adhesions.org)
Mon Sep 20 20:10:07 2004
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]On Behalf Of
Dee1020tt@aol.com
Sent: Monday, September 20, 2004 7:58 AM
Subject: Re: Help Me
Karen,
It has been a while since I have checked my e-mail. So
I am sorry if this e-mail just now gets to you. I too have
had a surgeon who knicked a main artery in my ab. He
totally ditched me as a patient. My primary care doctor
made a decision to put me in ICU with 4 units of blood.
I was hemorraging inside and my blood pressure was
dropping rapidly. This surgery was almost 2 yrs. ago .
It will be 2 yrs in Oct since my last surgery. I am
trying to stay away from surgery as much as possible
as it just causes more adhesions. I know that my
adhesions are back and have wrapped themselves around
my intestines again. I know this because I have
extremely painful bowel movements again and are getting
worst. I see a pain specialist from time to time to
help me deal with this pain. I told my primary care
doctor that they are back again and he told me no
surgeons want to touch me. I am a high risk patient.
So I told him, then I guess I will just suffer and
live with it as best I can. I also told him that I
will just wait to have another bowel obstruction
again. He told me don't wait that long for something
like that to happen. I don't have a choice right now.
I live on my own and have been doing so since March
of this yr. I have family, but I don't want to burden
them with this. My sister and her husband don't really
have the time to help me and I dare not ask my sister
period. She is a the boss of a very prestigious company
and she feels I need to deal with this on my own. Plus
my sister has a heart condition which the Mayo Clinic
is trying to find a cure. She has been through hell
with her medical problems too. My mother is a brittel
diabectic and is on disability. She is also on section
8 housing. She has been ill for quite sometime and
seems to be getting worst as the yrs go by. So I am
literally on my own. I am praying that I can at
least make it through till my lease is up. I may
have to find a roomate as my health is getting worst.
I have horrible low back pain and just don't havet
the finances to seek a specialist and get medicine.
I have high blood pressure and I am also taking
medicine for my cholesterol.I have been working
alot of overtime at work to make a little extra
money in case I end up in the hospital. I am
so sorry that I am rammbling on. It just feels
better to talk to anyone who will listen. I
just can't afford to be out of work right now.
I am really scared that I may lose my job due
to using my FMLA. In my state, in order to
receive disability, you have to be not working
for a yr or more. I can' t live on nothing! It's
impossible! I wrote a letter to Donald Trump and
Bill Gayes Foundation to seek financial assistance.
My medical bill are up to 5k again and I can't
afford to have another bankruptcy. I gave them
info on ARD and how many patients truly suffer
wtih this debilitating disease. I received a
response from both parties and was told good luck
with your endeavors. We don't help individuals,
just non profit organizations. I thought I would
at least try. I am so afraid of what is happening
to me. I am trying my hardest to tolerate the pain
as much as possible. I am almost out of my blood
pressure medicine and can't afford to get it
re-filled.
It is really scarey out there when you are all by
yourself trying to survive. This disease has
robbed me completely. I haven't date in 7yrs since
my divorce.I do have friends at work, but they
don't understand how bad this disease is. I wish
I could afford to see Dr. Gerhart, but I can't
afford to be out of work for that long. Just
don't have the finances to do so. It is just
a matter of time before I have another bowel
obstruction again. I just needed to vent.
I am so sorry.
Dee
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