Karen, It has been a while since I have checked my e-mail. So I am sorry if this e-mail just now gets to you. I too have had a surgeon who knicked a main artery in my ab. He totally ditched me as a patient. My primary care doctor made a decision to put me in ICU with 4 units of blood.
I was hemorraging inside and my blood pressure was dropping rapidly. This surgery was almost 2 yrs. ago . It will be 2 yrs in Oct since my last surgery. I am trying to stay away from surgery as much as possible as it just causes more adhesions. I know that my adhesions are back and have wrapped themselves around my intestines again. I know this because I have extremely painful bowel movements again and are getting worst. I see a pain specialist from time to time to help me deal with this pain. I told my primary care doctor that they are back again and he told me no surgeons want to touch me. I am a high risk patient.
So I told him, then I guess I will just suffer and live with it as best I can. I also told him that I will just wait to have another bowel obstruction again. He told me don't wait that long for something like that to happen. I don't have a choice right now.
I live on my own and have been doing so since March of this yr. I have family, but I don't want to burden them with this. My sister and her husband don't really have the time to help me and I dare not ask my sister period. She is a the boss of a very prestigious company and she feels I need to deal with this on my own. Plus my sister has a heart condition which the Mayo Clinic is trying to find a cure. She has been through hell with her medical problems too. My mother is a brittel diabectic and is on disability. She is also on section 8 housing. She has been ill for quite sometime and seems to be getting worst as the yrs go by. So I am literally on my own. I am praying that I can at least make it through till my lease is up. I may have to find a roomate as my health is getting worst.
I have horrible low back pain and just don't havet the finances to seek a specialist and get medicine. I have high blood pressure and I am also taking medicine for my cholesterol.I have been working alot of overtime at work to make a little extra money in case I end up in the hospital. I am so sorry that I am rammbling on. It just feels better to talk to anyone who will listen. I just can't afford to be out of work right now.
I am really scared that I may lose my job due to using my FMLA. In my state, in order to receive disability, you have to be not working for a yr or more. I can' t live on nothing! It's impossible! I wrote a letter to Donald Trump and Bill Gayes Foundation to seek financial assistance. My medical bill are up to 5k again and I can't afford to have another bankruptcy. I gave them info on ARD and how many patients truly suffer wtih this debilitating disease. I received a response from both parties and was told good luck with your endeavors. We don't help individuals, just non profit organizations. I thought I would at least try. I am so afraid of what is happening to me. I am trying my hardest to tolerate the pain as much as possible. I am almost out of my blood pressure medicine and can't afford to get it re-filled.
It is really scarey out there when you are all by yourself trying to survive. This disease has robbed me completely. I haven't date in 7yrs since my divorce.I do have friends at work, but they don't understand how bad this disease is. I wish I could afford to see Dr. Gerhart, but I can't afford to be out of work for that long. Just don't have the finances to do so. It is just a matter of time before I have another bowel obstruction again. I just needed to vent. I am so sorry. Dee