My name is Sharon I have Been sick since 1988 I have had 18 abdnomial
surgies so far I am at the poin now that I have been told that there is
nothing that can be done for me anymore just treat the chronic pain . I
have been told that the adheasions are so bad all over my bowels that
they are just in a ball they do not lay normal and that is the cause of
the chronic pain now . I have found a good primary Dr that for over a
yr now has treated the pain and problems that have come up . For
several mo now I have been doing very well recently my the state
medicaid has been sending him a letter regaurding the amount of pain
medication I am on . I have done a pain reset in April and have lowered
the MS Cotin from 60 mg to 15 mg a day and I take 20 mg of Roxnol every
6 hr as needed this is working fine befor I was on the pain meds I
couldn't even get out of bed and I just wanted to die I can not go back
to the way I was . My Dr has said he will no let me suffer and I have
complete confidence in him . I am just scared . I know there has been
alot of new treatment devolped over the last couple of yrs The last
specialist I saw was terriable he told me I wasnt worth the cost of the
treatment . I wont go back to him so I am looking for a Dr That
specializes in adheasions . I live in Joplin Missouri and am willing to
travel if anyone can send me in the right direction I would be greatful
. God bless everyone I know how hard it is to live with chronic pain
and to be told it is all in your head when I first got sick they just
kept doing surgies my problem of chronic bowel obstruction is so rare
they dont even have a name for it they know what my bowel is doing but
dont know how to stop it so they get to the point that it is my fault
and that I am causing it . My Dr now is great he knows that I am not
the cause but he says that because I have been doing better that there
isnt justifaction for giving me the amount of pain meds that I am on I
dont blame him it is the pencil pushers that govern this that have tied
his hands .