It's AnnMarie here again....
From: AnnMarie (sweetlilqt913@AOL.COM)
Thu Jan 27 17:16:19 2005
Hello everyone... I dont know if many or any of
you remember me, but Ive posted here before in
the past, and well here I am months and months
(probably even years!) later exactly where I
started... but WORSE!
Incase noone does remember me- Im 20 yrs old (female)
that was born with hydrocephalus (fluid on the brain)
and have massive pelvic adhesions. I have had 31
surgeries now, for both the hydrocephalus and gyno
problems like ovarian cysts, pelvic pain ect. Well
last Feb. I had an ovarian cyst removed that was the
size of a grapefruit! the ob-gyn who did it could NOT
believe what my insides looked like, thats how bad
the scar tissue is... he said in his 25 yrs of
being a ob-gyn he had never seen anything so horrific.
he also had to call in a second surgen to "help"
him out when he removed the cyst last year. Well now
I have yet another cyst. I have old ob gyn's who
have done laprotomies and scopes and she said she
dug and dug thru adhesions and said I definitly only
have one ovary- my left one. she said I DID NOT
have a right ovary. but when I went for the last
ultra sound for this left cyst that was bothering me
(ALOT!) the ultra sound tech said I DO have a right
AND a left ovary because I have a cyst on my right ovary,
and TWO of them on my left!( one on the outside of my left
ovary and the other on that same side is INSIDE my ovary)
so who is right.. I dont know... nor do I know how
many ovaries I actually have! Either way these cyst(s)
on the left side r KILLING me! to the point where it
takes my breath away at times (not in a good way
either! lol)WEll my ob-gyn has basically told me he
doesnt know what to do! I am sooooooo fusterated,
and confused because to me if a dr doesnt know
what to do and how to help me, how am I ever
suppose to know?!?! he told me he will not remove
any of the cysts because of what he saw last yr when
he went in there.
and I guess since I already have lots of adhesions
no surgery isnt such a bad thing! but I also cant
just sit back and "deal" with the pain either! its
bad enough I have to deal with the pain from the
adhesions every single day of my life... pain from
cysts on top of that is just too much for me. Im
trying to be be "wimpy" and to be brave and deal
with it, but I really just dont know how much longer
I can do it for.
Pain meds arent even working to help deal with
the pain either! the pain meds actually never did
help with the pain from these cysts from the begining
(when I was first diagnoised with the cysts they
admitted me to the hospital and treated my pain with
morphene, while they tried to decide what they could
and wanted to do about it.)my ob-gyn also put me pn
bc (birth control) to help prevent future cysts,
but it still hasnt helped the fact that I still have
cysts on my ovaries now! does ANYONE have ANY
suggestions at all for me? if so they would be
greatly appreciated! Thanks in advanced AnnMarie
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