Re: Adhesions & Lower Back Pain
From: Maureen Donohue (mdonohue1@mindspring.com)
Sun Feb 27 16:20:21 2005
At Sun, 20 Feb 2005, Terri wrote:
>
>Hello, I am a 53 yr old working as an optician in Medford, Ore....have
>ha a radical hysterectomy in 2000..I was full of endrometeosis and
>later got horrible adesions.that were so painfull they tended to pull
>me down forward by days end...
Dear Terri,
Did you get any help at all from anyone on this problem?
Years ago I joined this group (the website adhesion
group -- my gyn doctor never told me about adhesions
even though my surgery was pretty severe) and finally,
after threatening suicide had laporoscopic surgery for
adhesions which relieved a lot of the pain I suffer
over my pubis and through my left hip and leg. This
was in 1999. The laporoscopy reduced the pain in my
gut to a manageable level for about two and a half
years, although I had rectal problems that weren't
adressed by it. However, at this time, pain is back
full force and I am completely desperate.
I have been going to pain management at St. Luke's
in Manhattan where they have been treating me for
lower back pain which I always said was related to
my gut pain. I bave been in the ER several times
for intestinal blockages. I have also had (failed
miserably)electrode rectal biofeedback for rectal
pain and and a prolapsed rectum (this was just
finally diagnosed in 2004 at the Cleveland Clinic
in Florida where I went after all the NYC doctors
dismissed my rectal problems as nerves and pelvic
platform instability.)
I am convinced and have told the doctors now for
the last eight years since my hysterectomy in 1996
that my rectal pain and my gut pain seemed to be t
wo different problems but they have just dismissed
me. I keep telling me that when the gut pain and
swelling kicks in my lower back goes out and that
this started after my hysterectomy.
I am at my wit's end today, so I have come back
to the adhesion society website. Your email talked
about the lower back pain which has been crippling to
me and associated it with adhesions which they know
I have.
However, all the doctors seem to think that surgery
for adhesions is not an answer. And now the
colorectal doctor who was going to do the surgery
to repair my rectum says he doesn't want to do it
because of the constant nerve spasms. So I am
left with the constant nerve problems as well as
the problem of having my rectum go into spasm
everytime stool enters it. I am desperate for
any answers.
There is no support group in NYC listed in
this website. Please let me know if you find
any answers. I will let you know if I find any.
I am going for some new tests (colorectal) on
Monday which will determine whether or not the
colorectal doctor will do any surgery to correct
the rectum, but I am being told that the
adhesions should not be so painful as I keep telling
them they are.
My family doctor has sent me a thing on homeopathic
medications to supposedly break up adhesions.
I can't really believe in this; but I am pretty
desperate. The PT people massaged my scar and
my family doctor injected it and all I got was
lots of nerve pain and no results at all, so I
doubt this type of therapy has any validity.
--
Maureen Donohue
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