I was pain free for about 3 months. Then the pain returned full force. He said there was nothing more he could do for me and the I would have to learn how to live with the pain. My husband was livid and I was devastated and did not know what to do.
Had recurrent urinary tract infections and found out that the left ureter was blocked with scar tissue. I had 4 procedures to clean out this and had stents for about 8 weeks at at time. The pain would come back each time. Finally had to have surgery to reimplant the ureter in the bladder to avoid losing the left kidney, which of course involved an open abdominal incision and was pain free for about 2 months. Pain returned so was sent to a neurologist who did an MRI, which came back normal. Urologist said there was nothing more he could do for me and when the pain got too bad to just get off my feet and to lose some weight. I could not believe it and cried the whole way home. Needless to say, I changed urologists.
My primary doctor sent me to a surgical specialist who did surgery to remove the adhesions and said that I had massive adhesions and had to take my bowels out of my body, clean them off, and put them back in and that they were stuck to my abdominal and stomach wall. Pain never went away.
Continued having UTIs and went back to urologist and had an IVP done and found out that now the right ureter is blocked, although no pain on that side, and had procedure to fix that, and the urologist said that any more sugery would be life threatening, but also could lose my right kidney because now he thinks the right side is blocked again. Scheduled to have another IVP July 5 to find out.
Went back to my primary doctor again for the pain and he said that he would try to help me, but now says that there is nothing he can do and that he does not give chronic pain meds for abdominal pain and back pain. But will not give me a referral for pain doc because "they will ruin you", he says.
The pain is so bad that I cry most days. I am gaining weight because I cannot exercise and am already overweight. Should I go to a gastro doc for the nausea and stomach upset or try to get a referral for pain doc?
I live in Mobile, AL and do not know of any adhesion specialists in this area but am looking into the Birmingham area for some. I am sorry this post is so long, but I felt that I need to tell my story to see if anyone can give me any advice on what to do. I hope everyone is feeling alright today and thanks to anyone who reads this.
-- Ann