Re: pain, cramping, C, D, and feeling isolated
From: Ann Marie Endres (blueis88@optonline.net)
Tue Sep 13 20:29:47 2005
Hi there, not sure if I can help, but wanted you to know you are not alone.
I too feel isolated so much of the time. Of course no one around me can
even begin to understand the magnitude of the pain. I have been with so
many doctors that have basically said it was in my head and that I was
crazy. Looking for attention. I know even my family thought the same. I
am one of the lucky ones because I have never had an obstruction. At this
point I take a stool softener 3 times a day. I was sick of hearing that I
needed a colonoscopy just to rule things out. That was from the docs who
believed it was in my head. I too also had the self doubt but then the pain
gets soooooooo bad there is no way it could be in my head. I have always
hid the pain from my family. They have never known the extent. It seems
that if I say I am in pain they roll their eyes at me.
I know the fear you have with the new docs. I always feel weird when I go
for any kind of test. I think how sick can you be that you are wishing they
will find something. I think it is ok to feel different emotions with this.
So many times we have been told it was in our heads. It is like people with
chronic fatigue syndrome. How long they went with just being called lazy.
My prayers are with you for your appointment. The only other thing I would
think of to bring with you is a pain record if you have one. Personally I
don't have one because it is there all the time and every day it gets a
little worse.
Take care
Ann Marie
>----- Original Message -----
From: "International Adhesions Society" <tracy.joslin@adhesions.org>
Sender: michelle_mkm@yahoo.com (michelle)
Subject: pain, cramping, C, D, and feeling isolated
>
> i am feeling very isolated from my abdominal pain, constipation,
> diarhea, etc. Every time i see a new doctor, or they can't figure
> anything out, and i am made to feel it is all in my head, i start to
> believe them! ANYONE ELSE!?!?
> Isn't this rediculous?!
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