Re: Want to chat about adhesion pain
From: Rebecca (rjtucker@peoplepc.com)
Wed Oct 19 21:04:19 2005
Dear loriroot,
I'm sure sorry the chat room is not running and
even more sorry to hear about your pain. I might
be able to share something useful with you since
I've been dealing with this since 1982. My first
obstruction finally came in 1989. I've had so
many since then, I've lost count. I've had six
resections and adhesiolyses, and am looking at
the seventh probably next month when I go down
to consult at the Motility Clinic at Cedar-Sinai
in Los Angeles. I've been on chronic pain management
now for two years.
My primary care doc referred me to a pain specialist
who was familiar with chronic pelvic/abdominal pain
related to adhesions/endometriosis. He was very liberal
in his orders, and I have been able to pretty much
control my pain at home with only a few ER visits over
the past year. I now use a Duragesic patch and Actiq
troche (like a sucker) at 600 micrograms every six hours.
Since I'm severely addicted after nearly two years, I
stretch out my Actiq and stop using the patches by cutting
down when the pain is more tolerable. But, inevitably,
I end up back on the patch and the troche every six hours.
I was, of course, getting pretty depressed about all I go
through, as all of you do to different degrees. If you
live where there is a pain management specialist, I would
highly recommend that you start the process. It's either
that or start living in the ER and listen to them tell
you that you're not having as much pain as you let on.
The word "drug-seaker" is probably one that we've all
started hearing after a certain point. Don't listen.
You will get depressed sometimes, and if it gets bad,
let your primary know. I started on Lexapro a short
time ago and I felt like I was somehow "giving up" or
giving in, or something, but when I started feeling
so much better, I changed my mind. I can actually
smile again and my life has really taken on a much
more positive quality. It helped me AND my family.
Hope this helped, even in a small way....
Rebecca
-----Original Message-----
Sender: loriroot@ucnsb.net (lori)
Subject: Want to chat about adhesion pain
I am having a hard time finding the chat room. I had a colostomy and
the reversal. I have also had exploratory surgery and a cyst
aspiration. This pain is really taking a toll and there doesn't seem to
be an answer. How do you cope? During exploratory surgery my doctor
said my intestines look like a bowl of spagetti with cement poured in.
Surgery is especially risky and not guaranteed to help with pain. How
do you cope?
[moderator note: our chat room is not running at this time]
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