Abdominal Adhessions
From: Marlene (wheelerski@earthlhink.net)
Wed Nov 23 18:04:46 2005
I'm new to this site. I have been reading a lot of these messages in
the forum. It's been amazing to me still as a medical person how much
of problem adhessions can be for people. Especially how much pain and
suffering people go through for something that it seems like should be
fixable. I've watched and been in on surgeries for adhessions, but
until I started having trouble my self?? Over the last 2 years I've had
4 different surgeries. The original surgery was a bowel resection for
fistulas that we couldn't get rid of with medicine. I also had some Gyn
stuff done at the same time. Two days later I was hemmoraging and ended
up back in surgery. A few months later I had to have my gallbladder
out. And one year ago a surgery (laproscope) specifically for
adhessions. Well now needless to say I am back to the pain. It's
progressively gotten worse over the last several months. I'm at the
point now where I'm only drinking and that is even painful. The doctors
are very reluctant to do surgery again because on paper I still look Ok.
I do have a stricture, but even that is not bad enough to warrent
surgery, they tell me.
Meanwhile my quality of life has gone down quite
dramatically. I've been in the ER 4 or 5 times in the last couple
weeks. The only thing that keeps me out now is an increase in pain
medicine, and a lot of faith in God. The Doctors are afraid to do
anything, because I'm sure they think they'll make me worse. I'm
constantly struggling with dehydration and weakness. This all has
affected not only me but my entire family and friends.I lost my Job, I'm
on disability, and heading toward SS Disability. I have two teenagers
that need me and a husband that is fed up with everyone.(including
me.)He's sticking in there, but I'm not sure my marriage is going to
survive this. I feel so helpless some times.I've always been a active
person and have worked as an RN for years and feel like I still have a
lot to give if it weren't for this. I feel like it's just a waiting
game now.
I'll get bad enough that they won't have a choice. I'm in
the process of a second opinion. I'm seeing hololistic drs, a
Chiropractor, Councilor,etc. I really feel for all of you out there
that have been battling this for years. I do have faith that their will
be some relief from all our suffering at some point from the medical
community. It's just amazing to me they haven't figured this out yet.
Another thing that's amazing is how many drs play down the adhessions as
if their not that much of a problem, and that we need to deal with them.
While I don't know about you all, but I'm not ready to give up yet. I
wake up every day fighting and praying for relief. We've discussed
sending me where ever, if my new Drs aren't able to come up with
something.
Hang in there all and God Bless..
--
wheelerski@earthlink.net
Moe (nick name)
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