Re: Acitq
From: (no name) ((no email)@obgyn.net)
Sun Jan 8 15:39:42 2006
Hi Ann Marie,
Gosh, it's been so long and sorry for the lapse in response. I've had
surgery again, and this time I've done much better than before. I think I
told you about Cedar Sinai. Wow! What a refreshing change. My room was like
a motel room and had two large bay windows, my bed, a private bath, a full
length couch, a large table and three chairs, and a guest bed which my
husband was encouraged to use as he needed. The staff were at my
beck-and-call every 20 minutes, whether I called or not, and my call bell
was never left ringing without an immediate response. Can you imagine? Every
single staff member, from the doctors to the housekeeping staff were very
accommodating and genuinely concerned. My surgeon was fantastic and I had
the smallest post op scar that I've ever had and also weaned down off the
pain medication much quicker than ever before. I'm still on the morphine
pump, but not for pain. I'm weaning down off of it slowly and will be seeing
the Cedar Sinai Pain management clinic on Monday to talk about going off the
pump and back on to oral medications. I'm hoping for Methadone and wean down
to completely off. I've just gotten off the TPN and am trying solid foods
already. I've never been able to eat this soon after surgery, but am also
using the tube feeding along with solids. So far so good, however, when my
stools get even slightly formed, the pain strikes again. We'll have to see
how it goes as I wean down further. I really want off, but am objective
about not wanting pain, either. I've (we all have) suffered too much pain to
pass it off. I'm sure I'm apprehensive about it too, but I'm sure anyone who
has had the kind of pain we all have would also find themselves not wanting
to get to the point of no return before doing something about it! I hate
being that way, but accept it, all the same.
I know what you mean, Ann Marie, about family watching the stick. My husband
got to where he'd see one of the sucker sticks somewhere and see "I'll sure
be glad when we never see one of these again!" He really cares, though, and
hates that I have to go through so much. He takes time off work when I'm
having a really bad day with vomiting and not eating, so I sure can't
complain, but I can relate too about the pain meds and how the family
responds sometimes. I've gotten where I take the stick off too. It's just
easier not to even have to see their faces.
I haven't heard from the insurance yet, but should hear soon about them
covering the Actiq. I don't want to get back on it since I had so much
trouble getting off. I guess a year and a half is too long to just quit cold
turkey.
Well, I pray for you all and thank you all for your thoughts and prayers.
That's about the best we can do for each other...besides having all the
empathy in the world. Love to all...
Rebecca
>----- Original Message -----
From: "International Adhesions Society" <tracy.joslin@adhesions.org>
To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
Sent: Thursday, December 29, 2005 9:21 PM
Subject: Acitq
> Sender: Ann Marie Endres <blueis88@optonline.net>
> Subject: Re: Acitq
>
> Reba,
>
> Wow is the only thing that seems to come out of my mouth when I read about
> the withdrawal from the Actiq. As I stated before, I am on only 400 mcg.
> I
> do not seem to have any of the same issues as you do when it comes to
> withdrawal. I wonder if it has to do with the Methadone that I am on. I
> know they use Methadone also to help people get off other narcotics.
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