Hello all, I hope that you're all having a pain free day - even though I know that's basically unheard of. My adhesions have been unbearable for the past month. I've had them for approx. 15 years. My last surgery was in 2/05 - for a bowel obstruction (6 week hospital stay with 2 surgeries). I went to a pain managemet dr. last week and got a prescription for percacet. It barely takes the edge off but makes me groggy. Does anyone know or have experience with a pain medicine that works for this horrendous pain. I am once again passing kidney stones (a common side effect for those with inflammatory bowel disorder-I've had chronic diarhea since my last surgery). I went and saw a urologist this week because my bladder and kidneys hurt so bad. He did a bladder scope - Ugh!!! We could see tons of stones floating around my bladder. He diagnosed me with Cystitis, He gave me 2 prescriptions to fill which I haven't rushed out to do since I believe in my heart that once again it is a result of my adhesions. The meds also take up to 3 months to take affect. I'm almost ready to go to Germany for surgery. I would love to find a surgeon to preform a laparoscopy just to hold me off for 2 years until the fda approves spray gel. Well, I just needed to vent. Good luck to all of you. Diena (Long Island)
"IAS Admin (Tracy)" <tracy.joslin@adhesions.org> wrote: Sender: Ann Marie Endres Subject: Re: Adhesion specialist in Boston or Providence
I wish you luck in finding someone. If you do, please post here. I would be willing to travel from New York. I too suffer from cysts. right now I have some on my vaginal cuff which basically is the only place left for them
to be. I get them every month and it makes the adhesion pain so bad that the pain meds don't work. I went to the hospital 4 wks ago and they did nothing. My doc said I just have to ride them out. No one knows why I get them because I had a hysterectomy when my son was born and my ovaries removed 2 years after that. I should not have any cysts or endo, but when the docs did surgery last year it was all there.
Take care
Ann Marie