Adhesion specialist in Boston or Providence
From: IAS Admin (tracy.joslin@adhesions.org)
Sat Aug 26 15:40:28 2006
@adhesions.org] On Behalf Of Diena LoBianco
Sent: Saturday, August 12, 2006 1:06 PM
To: tracy.joslin@adhesions.org
Subject: Re: Adhesion specialist in Boston or Providence
Hello all,
I hope that you're all having a pain free day - even though I know
that's basically unheard of. My adhesions have been unbearable for the past
month. I've had them for approx. 15 years. My last surgery was in 2/05 -
for a bowel obstruction (6 week hospital stay with 2 surgeries). I went to
a pain managemet dr. last week and got a prescription for percacet. It
barely takes the edge off but makes me groggy. Does anyone know or have
experience with a pain medicine that works for this horrendous pain. I am
once again passing kidney stones (a common side effect for those with
inflammatory bowel disorder-I've had chronic diarhea since my last
surgery). I went and saw a urologist this week because my bladder and
kidneys hurt so bad. He did a bladder scope - Ugh!!! We could see tons of
stones floating around my bladder. He diagnosed me with Cystitis, He gave
me 2 prescriptions to fill which I haven't rushed out to do since I believe
in my heart that once again it is a result of my adhesions. The meds also
take up to 3 months to take affect. I'm almost ready to go to Germany for
surgery. I would love to find a surgeon to preform a laparoscopy just to
hold me off for 2 years until the fda approves spray gel. Well, I just
needed to vent. Good luck to all of you. Diena (Long Island)
"IAS Admin (Tracy)" <tracy.joslin@adhesions.org> wrote:
Sender: Ann Marie Endres
Subject: Re: Adhesion specialist in Boston or Providence
I wish you luck in finding someone. If you do, please post here. I would
be willing to travel from New York. I too suffer from cysts. right now I
have some on my vaginal cuff which basically is the only place left for them
to be. I get them every month and it makes the adhesion pain so bad that
the pain meds don't work. I went to the hospital 4 wks ago and they did
nothing. My doc said I just have to ride them out. No one knows why I get
them because I had a hysterectomy when my son was born and my ovaries
removed 2 years after that. I should not have any cysts or endo, but when
the docs did surgery last year it was all there.
Take care
Ann Marie
|
