I think you are on the right track with the yoga and mind-body. Although it isn't going to take away all of the pain and problems that adhesions cause. I feel that pain management is a good option along with self-help. I don't know what I would do without pain management. I still have pain and bowel problems but at least I can get out of bed and do alot of what needs to be done.
If you can find a good pain management doctor who knows a little about adhesions, he or she could probably help with the pain. Have your pc refer you to someone. Kelly
____________________________ Reply-To: adhesions@adhesions.org
-- ____________________________ Date: Tue, 5 Jun 2007 16:48:38 -0500 >Sender: curiositykid@aol.com (Suz) >Subject: Frustrated beyond belief > >Hello All, > >This is my first post to the site - I came across it a few weeks ago >while trying to explain to my friends what I was going through (so far >I've found it to be very useful - thanks!). > >In brief (sort of): I'm 42 and have had various ovarian cysts, ovarian >masses, and fibroids for the past 30 years that led to several >myomectomies and eventually a hysterectomy at age 36 that included >taking my compromised left ovary and part of my cervix. At the time of >the hysterectomy my physician voiced serious concerns about the scarring >from the previous procedures (done in the same location) and possibly >subsequently from the hysterectomy, but I didn't comprehend quite what >she was saying (despite having worked in health care for 6 years! But >that was a while back). > >Over the last couple of years I've had increasing abdominal pain, >usually in the lower right quadrant, that was associated with acute IBS >(something I've also suffered from for more than 30 years), muscle >strain, hemorrhagic cysts on my remaining, right ovary - even >hypochondriasis! (thankfully ruled out almost immediately) > >The pain is now so intense I am unable to sleep for more than an hour at >a time; this has been the case for more than 8 months. My GP referred >me back to my OB/GYN, who then explained to me what she's been worried >about all these years. At the same time I have several growing >(although they hope hemorrhagic) ovarian cysts, the largest being 7 cm. >at last assessment. No one wants to do surgery because they believe the >adhesions are so severe I would at least have a temporary colostomy bag >from damage done during surgery, with a very high risk of permanent >damage. As a result I'm being bounced around from doctor to doctor with >no viable solution in sight, no one confident enough to help me (my take >- but that's probably because I'm so frustrated right now). > >I also do not/will not take narcotics because of other medical >conditions. When I say I can take pain, please believe me - I'm >tattooed and pierced and have a rather high pain tolerance. This is >incredible - this is the kind of horrific pain that grabs if I'm not >still or in just the right position. As an active person I find it >horribly debilitating and depressing, and getting more so every day. > >I guess I just want to find a community of people who 1) get it and 2) >may be able to communicate some suggestions for getting my state of mind >in a better frame. I've tried yoga and think it's great - I'm looking >into acupuncture, too. I believe in mind-body healing and realize my >downward spiral isn't helping, but when you get a "we're sorry but we >can't make it better" response from your care provider it can really get >you (me) down. *sigh* > >Looking forward to your responses and reading through the archives. Just >knowing I'm not alone helps, and I'm open to all sorts of responses - >please don't let my clinical approach put you off but I'm trying very >hard these days not to let it all get me down; it keeps me from being my >normal, chipper self. > >Thank you, >-Suz