Frustrated beyond belief
From: IAS Admin (tracy.joslin@adhesions.org)
Thu Jun 7 20:14:53 2007
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of
Kelly Murray
Sent: Tuesday, June 05, 2007 10:47 PM
Subject: Re: Frustrated beyond belief
I think you are on the right track with the yoga and mind-body. Although it
isn't going to take away all of the pain and problems that adhesions cause.
I feel that pain management is a good option along with self-help. I don't
know what I would do without pain management. I still have pain and bowel
problems but at least I can get out of bed and do alot of what needs to be
done.
If you can find a good pain management doctor who knows a little about
adhesions, he or she could probably help with the pain. Have your pc refer
you to someone.
Kelly
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Reply-To: adhesions@adhesions.org
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____________________________
Date: Tue, 5 Jun 2007 16:48:38 -0500
>Sender: curiositykid@aol.com (Suz)
>Subject: Frustrated beyond belief
>
>Hello All,
>
>This is my first post to the site - I came across it a few weeks ago
>while trying to explain to my friends what I was going through (so far
>I've found it to be very useful - thanks!).
>
>In brief (sort of): I'm 42 and have had various ovarian cysts, ovarian
>masses, and fibroids for the past 30 years that led to several
>myomectomies and eventually a hysterectomy at age 36 that included
>taking my compromised left ovary and part of my cervix. At the time of
>the hysterectomy my physician voiced serious concerns about the scarring
>from the previous procedures (done in the same location) and possibly
>subsequently from the hysterectomy, but I didn't comprehend quite what
>she was saying (despite having worked in health care for 6 years! But
>that was a while back).
>
>Over the last couple of years I've had increasing abdominal pain,
>usually in the lower right quadrant, that was associated with acute IBS
>(something I've also suffered from for more than 30 years), muscle
>strain, hemorrhagic cysts on my remaining, right ovary - even
>hypochondriasis! (thankfully ruled out almost immediately)
>
>The pain is now so intense I am unable to sleep for more than an hour at
>a time; this has been the case for more than 8 months. My GP referred
>me back to my OB/GYN, who then explained to me what she's been worried
>about all these years. At the same time I have several growing
>(although they hope hemorrhagic) ovarian cysts, the largest being 7 cm.
>at last assessment. No one wants to do surgery because they believe the
>adhesions are so severe I would at least have a temporary colostomy bag
>from damage done during surgery, with a very high risk of permanent
>damage. As a result I'm being bounced around from doctor to doctor with
>no viable solution in sight, no one confident enough to help me (my take
>- but that's probably because I'm so frustrated right now).
>
>I also do not/will not take narcotics because of other medical
>conditions. When I say I can take pain, please believe me - I'm
>tattooed and pierced and have a rather high pain tolerance. This is
>incredible - this is the kind of horrific pain that grabs if I'm not
>still or in just the right position. As an active person I find it
>horribly debilitating and depressing, and getting more so every day.
>
>I guess I just want to find a community of people who 1) get it and 2)
>may be able to communicate some suggestions for getting my state of mind
>in a better frame. I've tried yoga and think it's great - I'm looking
>into acupuncture, too. I believe in mind-body healing and realize my
>downward spiral isn't helping, but when you get a "we're sorry but we
>can't make it better" response from your care provider it can really get
>you (me) down. *sigh*
>
>Looking forward to your responses and reading through the archives. Just
>knowing I'm not alone helps, and I'm open to all sorts of responses -
>please don't let my clinical approach put you off but I'm trying very
>hard these days not to let it all get me down; it keeps me from being my
>normal, chipper self.
>
>Thank you,
>-Suz
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