Bonnie,
I am sorry that you have this disorder. I too had to leave my job and get
on disability.
I also have alot of pain. Have had adhesion surgeries several times.
I do know that since I started anti-depressants along with pain medicine
that at least most of the time it is tolerable. (Some days are very bad)
Have you been put on anti-depressants? You might look into that. Also,
the more that I lay down, the more depressed I get. I try and go outside
and get fresh air every day. I also began going to jazzercise two months
ago and that has helped. If a movement hurts too bad, I just don't do it.
I really think I have done better mentally though with the
anti-depressants. I have three children also and a granddaughter that is
the love of my life. Maybe you could get on Methadone for pain. I am on it
and it doesn't take all the pain away but it does help.
Just remember, that you are not alone and hopefully you can find a way to
feel better.
kelly
> >
> >thanks~ I just wanted to reply to your letter. I am in my early 40's and
> have gone from a super outgoing, cosmetic manager, in love with the world
> and my friends and family, and a happy loving mom to 3 children, to a
> severly depressed, constant severe 24 hour pain pathetic shut in from this
> terrible disorder, or whatever it is called. I have had to leave my job
that
> I loved, I am in so much pain that I do not leave my home, suffering major
> anxiety, all lost all my friends, most likely have become addicted to
> oxycontin just to get thru my days, a husband that is ready to fall apart
> after 24 years of marriage, and 3 children that are mad at me for being
sick
> and not being able to do anything with them anymore, except cry, and
sleep,
> that in a nutshell is my current life, if you can call it that....I do not
> know who I am anymore, this is a terrible nightmare !!!!! my parents are
so
> sad and are lost as to what to do anymore...It sounds like there are a lot
> of us out there, in the same situation. Had to let you know you are not
> alone in what you and your niece are going thru, there are too many of us,
> it is so sad .....bonnie
>