Any good doctors in the Baltimore area?
From: IAS Admin (tracy.joslin@adhesions.org)
Wed Oct 3 20:12:55 2007
________________________________________
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of
--
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rjtucker@peoplepc.com
Sent: Sunday, September 30, 2007 6:05 PM
To: tracy.joslin@adhesions.org
Subject: Re: Any good doctors in the Baltimore area?
Tom,
Have you thought about taking her down to Florida to the Celebration Health
Hospital? (They deal just with adhesion related disorders)
The web site address is: http://www.celebrationhealth.com
[admin note: you can also click on Celebration Health's logo at the top of
the list on the right side of any of our website pages]
You can contact them right on line, or phone. I contacted on line and was
called back in three days. They are the most helpful people I've ever met.
Your wife sounds like this would be her only avenue after all you've been
through. I'm not sure about funding or insurance, so that's certainly
something you might want to ask about. They very likely have specifically
worded forms for the purpose of obtaining insurance coverage out of network,
etc. Best of all to you both!
Reba
-------Original Message-------
From: IAS Admin \(Tracy\)Date: 9/24/2007 7:43:47 AM
To: Multiple recipients of list ADHESIONS
Subject: Any good doctors in the Baltimore area?
Sender: lordykalordy@aol.com (Karen & Tom)
Subject: Any good doctors in the Baltimore area?
My wife has been totally disabled by mysterious abdominal pain,
constipation, etc. for three years. We have been to many doctors, had
redundant tests, even major (unnecessary) surgery, to no avail.
She's been going to pain management for 2 1/2 years, and living on
dilaudid.
(If I let her have access to the full bottle, she would certainly kill
herself. She's been hanging on purely for my sake for a long time.)
Several leading gastroenterologists in the Baltimore area have given up
on her, actually dismissed her somewhat brusquely, saying they can find
nothing wrong with her.
The last one mumbled something about "maybe in six months or so" finding
someone to do a laparoscopy to check for adhesions.
Last time at pain management we saw a different nurse/practitioner who
also mentioned adhesions.
I'd been hearing that word for some time, but only had a vague sense of
what it meant. So I finally googled it, and was soon reading the
"Patient's Guide" at this site with mounting excitement. This describes
our experiences exactly, right down to the frustration with, and
plummeting opinion of the medical professions.
In the past few weeks, her condition has deteriorated significantly. She
says the pain is worse than childbirth.
We have an appointment to see her surgeon day-after tomorrow (9/25/07),
the say one who did her subtotal colectomy.
I don't know what to expect or hope for. I'd like to think that
surgery, and the use of barriers like Seprafilm , could give her her
life back, but just skimming over this site suggests to me that it's not
that easy.
What can we hope for?
Can anyone recommend any doctors in the Baltimore area?
-----Tom
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