AMEN!
Kelly
> Date: Mon, 12 Nov 2007 08:57:24 -0600
> From: tracy.joslin@adhesions.org
> To: adhesions@dns.obgyn.net
> Subject: help
>
> Sender: leenoga@cfl.rr.com (Ms Lee)
> Subject: Re: help
>
> >Doctors just told me that I have learn to live with my pain. I can't
> >except that. Willings to go any where for help? any suggestions?
>
> Yes, this is where it ends up.
>
> Surgery is NOT our friend. It is something that should not be done
> unless emergent [life/death]. I cringe when I see people looking for
> the next magical surgery.
>
> So many of us are double digit belly's, and my last one was 1994. The
> hardest part of dealing with this disease is acceptance.
>
> I lost so many years chasing magical Doctors, and zoning on my disease
> and willfully surrendering quality of life in the process.
>
> Now, I accept it, and focused on correct and beneficial pain management.
> I tossed myself into therapy to learn to expand my small world, and get
> on with life the best I could with love and compassion.
>
> I lost decades being miserable, I lost decades blaming and looking for
> the next surgery. That was the worst mistake and now I have
> complications above and beyond just adhesions.
>
> I am on SSDI and VA disability for my adhesive disease and problems.
>
> And...
>
> I have found peace, I have re-gained quality of life and I embrace every
> day I get out of the bed...Yup, physically I am a mess but the light
> bulb went on in my head years ago. I had to work at my recovery and
> stop expecting surgery to be the magical cure. I had to find balance in
> my life with this horrible disease and stop making it worse than it
> already is.
>
> At some point, you will find Doctors that will tell you NO MORE. This
> is also the point where the emotional work begins to accept the disease
> and learn to live with it. Pain management saved my life, and going to
> therapy really made me deal with it which chipped away and cured the
> depression that goes along with ARD.
>
> I love you all, and wish you the best life possible. I am simply saying
> I had to hold myself accountable and stop looking for a cure in white
> coats :-)
>