help Ms. Lee

From: IAS Admin (tracy.joslin@adhesions.org)
Tue Nov 27 16:48:23 2007


From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of jledge@bellsouth.net Sent: Saturday, November 17, 2007 9:02 PM Subject: Re: help Ms. Lee

how right you are. i tried one more time at CAPPS celebration hospital orlando. IT WORKED oh how thank ful i am to have normal bowel movements like clockwork. I am in shock.Dr. said 25% better i need ab wall repair. Don't know where to go for that. i can even bend over again. my ab don't get hard all over after eating or just before bowel movement. Dr. said i had a loop already he fixed it without resectioning to. thank God. hope it is alright to write you . sincerely Linda Edgeworth age 63 Ga.

-------------- Original message from "IAS Admin (Tracy)" > From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
Of > Kelly Murray
> Sent: Monday, November 12, 2007 7:45 PM
> Subject: RE: help Ms. Lee
>
> AMEN!
>
> Kelly
>
> > Date: Mon, 12 Nov 2007 08:57:24 -0600
> > To: adhesions@dns.obgyn.net
> > Subject: help
> >
> > Sender: leenoga@cfl.rr.com (Ms Lee)
> > Subject: Re: help
> >
> > >Doctors just told me that I have learn to live with my pain. I can't
> > >except that. Willing to go any where for help? any suggestions?
> >
> > Yes, this is where it ends up.
> >
> > Surgery is NOT our friend. It is something that should not be done
> > unless emergent [life/death]. I cringe when I see people looking for
> > the next magical surgery.
> >
> > So many of us are double digit belly's, and my last one was 1994. The
> > hardest part of dealing with this disease is acceptance.
> >
> > I lost so many years chasing magical Doctors, and zoning on my disease
> > and willfully surrendering quality of life in the process.
> >
> > Now, I accept it, and focused on correct and beneficial pain management.

> > I tossed myself into therapy to learn to expand my small world, and get
> > on with life the best I could with love and compassion.
> >
> > I lost decades being miserable, I lost decades blaming and looking for
> > the next surgery. That was the worst mistake and now I have
> > complications above and beyond d just adhesions.
> >
> > I am on SSDI and VA disability for my adhesive disease and problems.
> >
> > And...
> >
> > I have found peace, I have re-gained quality of life and I embrace every

> > day I get out of the bed...Yup, physically I am a mess but the light
> > bulb went on in my head years ago. I had to work at my recovery and
> > stop expecting surgery to be the magical cure. I had to find balance in
> > my life with this horrible disease and stop making it worse than it
> > already is.
> >


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