Re: Living with Adhesions

From: Andrea G. (agreenwald@kc.rr.com)
Wed Feb 6 18:00:23 2008


Lis, I just found this website, and am in tears with both relief and despair. I am relieved to know that I am not crazy, but despair that there is no hope for my problems. Like so many of you (us!) I have had multiple surgeries for a host of gyn problems and am now bound with adhesions that cause pain in every corner of my torso. I just had a colonscopy that was so harrowing the pain actually brought me out of anesthesia. I remember the agony as the "doctor" pushed through the narrows of my intestine. He did not even note the tight areas on his report--just said I had a normal colon. He failed to mention that OUTSIDE the colon is NOT normal. I asked him about the adhesions and he said that he doesn't "do" surgery for adhesions. What now? Take off work to go see my gen dr again? It doesn't look like there is hope. I will just wear maternity clothes forever and learn to ignore the agony. It makes me weep with true despair.

At Sun, 27 Jan 2008, Lis: wrote: >
>Hi,
>I am seated in my recliner looking like I'm ready to give birth any day
>now. The sad part of this equation is, it's a normal occurrence in my
>life. I'm 46 and had a total hysterectomy at 28 because of severe endo
>and even more severe adhesions. And like so many of you, I've spent the
>better part of my life looking for that one magic surgery to cure me.
>I learned to live with the pain a long time ago once I came to realize
>that no matter how many times somebody went in and "cleaned me up", it
>wasn't going to take long before I needed another tidy up. And,unless
>you've got a doctor willing to operate on you over and over again, who's
>been inside your body and knows the condition beforehand, it's VIRTUALLY
>IMPOSSIBLE to convince another one to do so. And, though it saddens me
>to say it,I've come to the conclusion after seven abdominal
>surgeries,"surgery" really isn't the answer, anyway. As a matter of
>fact, it's almost a cruel thing we do to ourselves. We have those few
>months virtually pain free and just when we begin to believe that we've
>finally had the "magical surgery" or found a doctor who really did know
>how to fix us, that familiar tug comes back. As the weeks progress, it
>pulls harder and deeper, and starts to stab again, too. Just when our
>clothes are beginning to fit better our tummies start to balloon up
>again. For us,adhesions may hibernate...but they always find a way to
>wake up.
>


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