Re: SprayGel Hope

From: Francine (rncine@aol.com)
Fri Jun 20 20:51:57 2008


Hi Donna, Your problems sound so similiar to mine that I had to write. 2 wks ago I had adhesion surgery. surgeon said I was a total mess. My stomach was stuck to my liver etc etc. I have had numerous abdominal surgeries in the past, caesarians, gall bladder, apendix, r. ovary etc. For the last 4 months I have lost almost 30 lbs down to 102 even drinking Ensure doesn't help. My doctors also found out that I have gastoparesis (emptying of stomach is so slow) so they gave me Erytromyecin (antibiotic)take 1 tsp 30 min before I eat. It seems to be working it gives me hunger pains. One of the nurses told me after a procedure with barium to go out and eat a greasy humburger that it would make you go real fast? Regarding your nausea and vomiting, I was also having that problem and the doctors found that it might have been from pain. Since I am now on pain medications it seems to be controled. Will write more later since sitting up and being on the computer tends to be a tad painful. Take Care Francine

At Mon, 2 Jun 2008, Donna Johansen wrote: >
>Hi Debbie,
>The more I hear from people who suffer from this the more I think all
>doctors need to be tied by their noses and drug to Germany to see what is
>going on there. What the hell is wrong here? I have a theory. This is
for >the most part a woman's issue. It isn't so very long ago that breast cancer
>wasn't taken seriously. A woman's issue.
>I am scheduled for knee replacement in the summer but it has taken me a
long >time and in the end I had to insist. In addition to the adhesion nightmare
>I am dealing with end stage arthritis throughout my spine and knees. A
>study in my area (Vancouver, BC) found that men were taken more seriously
>and given their needed replacement before women were. Women were and are
>made to suffer more.
>
>Debbie, I have started writing to the local papers (no success getting them
>published yet) as this needs to be heard about. We need to stand up for
>others so they can get the help too. I am leaving here for Germany on the
>6th of June to the great thanks of my family. It wasn't a piece of cake
for >them as they had to mortgage a house. The fact they would do that for me
>just makes me stand in awe of them all. But, what about those who can't do
>this with family funding? I know that should I be left on my own much
>longer I would go downhill. I have gone one year with very little solid
>food. The nutritional drink is my buddy but most of the time I cannot even
>take that. I am vomiting violently at any hour of the day and night.
>Sometimes nothing comes out but the heaves go on anyway. I made rhubarb
>crisp this weekend as I thought my family would enjoy it. I couldn't
resist >and had a few spoonfuls. Just craving food is such a rare thing for me. I
>was sick so sick that I spent the night regretting every mouthful.
>
>All the tests have turned up negative but I wonder why I cannot have a
>regular bowel movement? My doctor says "you sure have a slow bowel"!!! I
>have lost over 65 lbs in one year and the barium they forced me to have is
>still sitting in my bowel. That was over 6 weeks ago!
>
>They know I have an adhesion problem as they went in to see, in March. My
>adhesions have melded with my bowel, urethra, liver, and abdominal
sidewall. >It was so bad that the OB_GYN wouldn't attempt it. But ever since then
they >tell me I have to live with it and everything I tell them they don't
>attribute it to adhesions - it's something else! The thing that really bugs
>me to hell is that they won't find someone else who can do it so the work
>can be paid for.
>
>I am sorry for the long book here. Just living with this awful illness is
>slow torture. I would love to be involved in helping others when I get
back >on my feet. We need to put fire under the asses of the governing boards
>that are not approving medical substances such as SprayGel.
>
>More surgeons need to train in this method.
>
>I will say good bye. Thanks for writing and all the best in your search
for >truth.
>


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