From an adhesion buddy in Houston
From: IAS Admin (tracy.joslin@adhesions.org)
Thu Jul 3 16:51:44 2008
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of
carynlruzich@comcast.net
Sent: Wednesday, June 25, 2008 11:21 AM
Subject: Re: From an adhesion buddy in Houston
Hi Kat,
Don't worry about me, I have pretty thick skin. I know what I wrote and if
they want to interrupt it as discouraging narcotic use, then so be it. At
47 and being sick since I was a teenager, I know alot about narcotics. My
point was that, if anyone is like me, and has digestive problems, then
narcotics are not going to help. Narcotics work against the digestive
systems and slows everything up.
And I don't care what they say about being able to take narcotics long term,
I don't know a doctor on the face of the earth that would let a patient be
on them for years and years. At least here in Michigan, doctors are very
cautious about prescribing narcotics. Abuse is so rampant these days and
like I said, narcotics have their limitations. If anyone can find a doctor
that will prescribe them narcotics for years and years, well, more power to
them. But that is simply not my experience.
Especially when you consider what you're treating, narcotics are more of a
bandaid. My adhesions strangled my insides and drugs do nothing to stop
them from getting worse. The only real relief from adhesions is to have
them removed. Yes, most times its only temporary relief, but it's relief
non the less.
If we're really lucky, one day researchers will start seriously researching
effective treatment or better yet, prevention of adhesions. I read
somewhere the exact dollar amount adhesions surgeries and complications cost
us in health care dollars each year and it was unbelievable. One would think
that would get someone's attention and they would put some real research
dollars into finding a way to stop them. One can only pray.
The best advice I can give anyway suffering from adhesions is to be good to
yourself. If you have to lay around all day, then do it. If you can't
stand wearing anything tight around your stomach, then wear loose clothes or
summer dresses. If you have knots or kinks that hurt, put your fist into
your stomach or better yet, have someone else do it and try to manipulate
them. Adhesions can be broken, but it will hurt when you try. I have alot
of problems eating when the adhesions are bad, so if that's a problem you
have, go light on food, stay with liquids, drink lots of water, eat soft
foods, nothing fibrous or hard to digest. Drink milk shakes or slimfast.
Baby yourself, if you can.
Yes, there were a lot of years that I couldn't afford to 'baby' myself
because I had to work outside the home. And I suffered alot because of it.
It's also hard when others don't understand your problem, but that's our job
to make them understand. It's okay to not be able to participate in
everything when you don't feel well.
Having lived with adhesions for 25 years, I know how hard it is and how
discouraged you get trying to get help. But like I said in an earlier post,
NEVER STOP TRYING TO GET HELP. One day, you will run across someone who
will believe you.
I do enjoy this forum and I'm just fine with people who have different
opinions. And like I said, I judge no one. I know the hell that adhesions
can trap you in, so if you find something that helps you, go for it!
Tomorrow I'm going to see a holistic doctor and I will let you know if he
has any insight on adhesions and ways to relieve their pain. I'm looking
forward to it. Like I said, never stop trying.
Caryn
>-------------- Original message --------------
From: KKGrant@aol.com
"WOW" I just read today's posting on the IAS Web Site.
They really ripped your ass over YOUR opinion of pain meds.
I read all your postings and found not one word discouraging med's for pain
relief. What I read was YOUR opinion on how pain meds effect you!
Please don't let a couple of so called "adhesion buddies" discourage you in
any way! It's a shame they talked to you like that. As if we don't have
enough negativity in our lives to deal with! We have to put up with no one
understanding how we have to live in the outside world, we SHOULDN'T HAVE TO
DEAL WITH OUR OWN BUDDIES CUTTING US DOWN!
Some times these girls have been posting for a very long time and think only
THEIR opinion is right!
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