hello - you know my problem is near/above or below or on the diaphragm as well. I've never heard anyone else say that before. my problems are in that area due to a gallbladder surgery done 20 years too late and done piss poorly at that. when I couldn't breath and would (yes, true but embarrassing...) I would run in circles calling help ! help! - I mean when you need air, you need it now, you know. not in 30 minutes when the doctor calls you. anyways.... they all thought it was anxiety - the catch-all phrase that really means "we haven't a clue what the problem is here",. so they gave me Ativan. and 2mg Ativan apparently relaxes the diaphragm or something, and allows me to take a deep breath. as for the pain - since no doctor would give me vicodin or other pain relief measures on a regular basis - and that's what I needed - when I need it, it's there. not begging the doctor for some when I can't even sit to drive to his office. I mean come on! so what did I do? I went to one of them methadone detox clinics (I have Medicare, though I'm just 38. just, ha!) anyways.... so that way I made sure I got a dose a pain relief on a regular no-need-to-beg-for-it basis - and Ativan when I can't breath. and hey. I can get out of bed today. I can drive, walk, plan and go through with plans now. and if that means taking methadone and Ativan every day? then that's what I'll do. beats my old life of begging er doctors for one a pain pill or running in those can't-breath-you-gotta-help-me -PLEASE events. - J and Debbie - good luck with you, I know what that's like. feel free to write anytime if you feel the need to talk. ----------------------------------------------------- -----------------------------------------------------
----------------------------------------------------- From: krdfld@aol.com Sent: Thursday, July 03, 2008 9:46 PM To: Multiple recipients of list ADHESIONS Subject: Re: Liver/Diaphragm adhesions
I also have adhesions on my diaphargm which impede my breathing and I have to wear oxygen to bed at night. My o2 saturations dip into the low 70's. I have an enlarge liver with adhesions present however they are not stuck together to the best of my knowledge. I never had endo. So i don't know if that's what caused your's or not. Kathi
-----Original Message----- From: IAS Admin (Tracy) <tracy.joslin@adhesions.org> To: Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net> Sent: Thu, 3 Jul 2008 5:32 pm Subject: Liver/Diaphragm adhesions From: d_fincher@sbcglobal.net (Debbie) Subject: Liver/Diaphragm adhesions
I'm curious if there are any other board members who have this problem. My liver is attached to my diaphragm by adhesions as noted during a surgery several years ago. Due to the proximity to the hepatic vein it was decided removing the adhesions was too risky. This surgery was performed by a well known pelvic pain/endometriosis/adhesion specialist so when he was reluctant to remove adhesions I figured I was doomed to live like this.
With a history of severe endometriosis I have to wonder if it's endo that caused the adhesions on my diaphragm/liver...I'll never know.
I've complained of RUQ pain for many years. Eventually I had my gallbladder removed and while pathology showed my gallbladder was, indeed, diseased, it was chronically inflamed, my RUQ pain continues.
The pain is always there. It's a constant dull ache that sometimes turns into a sharp, stabbing pain. Certain movements can exacerbate the pain and it has even woken me from a sound sleep if I move wrong.
I've got a history of wildly fluctuating liver enzymes and wonder if this could in any way be associated with the adhesions. At the present time I'm awaiting approval from insurance to undergo ERCP to rule out biliary blockages.
I was really more curious than anything to know if there are others with liver/diaphragm adhesions and, if so, what symptoms you may be experiencing.
Thanks! Debbie
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