Re: Adhesion Hell
From: Donna (adj1@telus.net)
Fri Jul 11 19:43:51 2008
At Thu, 3 Jul 2008, Bonnie wrote:
>
>I just want everyone to know I am now in my 6th week of recovery, and
>feeling great after 6 1/2 years of living with adhesions and trying to
>get help, or even a diagnosis from the medical doctors in the province I
>live.Alberta.I cannot even begin to describe the pain and the life
>change with me and my family that having this disorder caused, and the
>long long disappointing search of trying to find help until I found
>Dr.Krushinski in Germany.
>After years of tests and seeing a million doctors and specialists where
>I live I am now recovering, it is unbelievable to describe.I no longer
>have the severe pulling, the knife jabbing pain on my left side, having
>my abdomen distend so badly, looked like I was carrying triplets, having
>to wear maternity clothes, as that was all that felt comfortable, and
>having doctors appointments every week,and the pain meds this is all
>over for me!!! I still cannot believe it.
>After years of I'm sorry Bonnie, this is all in your head, or no doctor
>willing to see me, I finally decided to take my health into my own
>hands.
>I contacted Dr.Krushinkski in Germany, he was certain he could help, I
>did not feel aprehensive at all, after speaking with him.
>At this point I had no choice but to see him, I had no other place to
>turn.
>I was in Germany for 16 days, and loved it!! even thru my operation of 3
>hours and the 2nd look to make sure all those nasty adhesions were gone
>I had the most wonderful time.I met alot of friends, including all the
>nurses and Dr.K.
>I was very unsure of what it would be like to go to Germany, but I want
>to go back again., I had the nicest time, no kidding here !!!!
>Dr.K. and all the staff treated me so well, better than what I ever
>experienced in Canada.
>Now I have the chance to restart my life, and try to make up the 6 1/2
>years I lost due to adhesions, and with no pain I have a lot of catching
>up to do.
>After years of depression and being told I cannot help you,I am starting
>over.
>My adhesions started immediatly after a total hysterectomy,They can
>start immediatly after you are closed up.I knew my pain, I knew all
>along it was adhesions, but no one would believe me, this was why I was
>so certain about Dr.K. and having to get there.
>This is a choice I had to make to save myself and my life.
>I am so happy I did.
>If anyone want's to contact me, please feel free to do so.
>If you would like more info on Dr.K. please go to Endogyn.de
>Bonnie
Bonnie,
This is amazing. I live in BC, not far from you, and just returned from
Germany a little over a week ago. Although I am still recovering from
the trip and surgeries I completely agree with how your experience in
Germany was. I do miss them all so much it's really strange but they
cared for me better than I have ever been in any hospital. Dr. K was
always there for me and he still is. I tend to panic when it comes to
my health because of the impossibility getting a diagnosis and being
made to feel like a nut case, and he still answers questions and
reassures me. My bowels had adhesions wrapped around and they are
taking some time to get back into gear. Anyone else experiencing this?
if so, any ideas on how to jump start them?
I am so angry at the medical system and how it treats those of us with
adhesions and other illnesses. I still have what I only recently (Dr.K
told me to look into this) found out is Snapping Hip Syndrome, and
perhaps some pain coming from my Lumbar Spine. What is so amazing is
that he suspected my hip as being the cause of one area of my pain.
Doctors in my area (Sunshine Coast) have not discovered this for 15
years! It's not a sure thing yet but when I looked these up online I was
so surprised at the similarity to what I am experiencing.
So, what does everyone feel about the fact we haven't gotten any care
with our doctors because we are mainly women and we are not respected
and taken seriously?
What can we do to help change things for those who are still suffering?
I truly want to make this happen. How could we fund raise to send those
who can't afford it, to Germany? Any ideas that we could put into
reality?
--
Donna Johansen
Gibsons, BC