Is this awesome new Dr. in Seattle? If so, would you mind emailing me their info? impishnet@hotmail.com
Thanks in advance! Jan
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> Date: Wed, 13 Aug 2008 12:37:37 -0500
-- _______________________________________ > From: tracy.joslin@adhesions.org > To: adhesions@mail.obgyn.net > Subject: Dr's in Washington or Oregon > > From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of > Rebecca M > Sent: Friday, August 01, 2008 11:24 PM > Subject: Re: Dr's in Washington or Oregon > > Hey everyone, > > I just saw my new doc a few days ago. She is awesome! She listened to me and > really heard what I was saying. From reading all these posts, I here some > common themes. First, that many have upper right abdominal pain. This is > what I've been suffering from as well. There is a little known disorder call > Fitz-Hugh-Curtis Syndrome. You can look it up on Wikipedia. My doc told me > its normally caused from a bacterial infection, and leads to pain > surrounding the liver. If a laproscopy is done, "violin-string-like" > adhesions will be found. The first treatment is antibiotics. However, I've > been on so many antibiotics lately, my doc and I knew I didn't have the > infection anymore. However, the pain can persist. I know it's not any "cure" > or treatment, but I know sometimes having a name for what you're feeling or > just having more info. to take to doctors is important. > > The doctor also did a pelvic exam and she said I was suffering from > vaginismus. Basically, my vaginal muscles are very tight...this can be > caused by a number of things, including pelvic adhesions. It makes > intercourse, and even inserting a tampon painful. So, she is recommending > physical therapy. Yup...for down there! I'm quite embarrassed and hesitant > but she told me that I'm not the only person that goes through this and that > the therapist (female, thank god!) is very good and makes you feel very > comfortable. The goal is to relax the muscles and will lead to a substantial > decrease in pain, and that I can actually enjoy intercourse again! WoHoo! > I'll be happy to wear a tampon! > > Finally, she warned me about getting pregnant. The adhesions in my pelvis > put me at a very high risk for an etopic pregnancy. The adhesions are all > over my fallopian tubes and causing blockage, therefore the chances of an > egg being fertilized there is very high. She said I probably can't get > pregnant because of the adhesions, but if I do, more than likely it would be > etopic. I don't know if this is the case for any of you, but for those that > are new to "adhesion land" it may be good info. to have and, again, take to > doctors. > > I have found that it is good to do your own research before you see doctors. > I actually printed off information and took it into my visit. She was > perfectly fine with it :-). She also cool with me taking notes, she drew > diagrams for me and allowed me to take those, as well. She thinks adhesions > and the pain associated with them are VERY REAL. She put me on amitriptyline > for pain, and is going to check in with me after two physical therapy appts. > > I would also encourage everyone, if insurance/income allows, to see a > psychologist or therapist of some sort. I'm not saying anybody is "crazy" > but I think having someone to talk to about what we're going through is sooo > important. Of course, sites like this certainly help, as well! > > Now that I've written another book...I'm off to get some rest. For once, I > have a glimmer of hope that my quality of life will improve. > > Wishing you all the best, and the least amount of pain, > > Rebeccas/