This is my first visit to this site. I have suffered since the age of
12 with endometriosis. I wasn't diagnosed until 27! I spent so much
time in doctor offices with doctors telling my parents and even my
husband that there was nothing wrong with me and I was faking it. The
first surgery I finally begged a doctor enough that she did a
laparoscopy and saw what was in there, she took pictures sewed me up and
told my husband it was too much for her to handle and I needed to go to
a specialist. I needed reconstructive surgery because the 13 years of
endo had clubbed both of my ovaries to my uterus then wrapped around my
uterus to my bowels and was attached to my adomenial wall were it was
pulling everything. I had relief for 6 months. Then it started back up
again. I had a second surgery to remove adhesions. Relief only for 3
months. Now it was back and no one would help me. I was in the
emergency room every week. The pain so bad I just wanted to die. I
begged doctors to do something and finally I was just given a choice to
have a hystorectomy. I have no children and they said I was probably
infertal anyway. So I went through with it. After the surgery I was
waking up in sever pain and they would not give me any pain medicine. I
couldn't understand why. I was laying there after having a hystoretomy
and they gave me nothing for a day. I was passing out from the pain and
my body was going into shock before the finally put me on a morphine
drip. I went home and a few days later on Thanksgiving morning I got
out of bed and blood just started flowing out of me and wouldn't stop. I
thought I was dying. My husband rushed me into the hospital and I had
an infection aroung the sutures. They didn't understand why after my
surgery I was not given antibiotoics. After a couple of days I was sent
home. Sure enough only a month later the pain started again. So I went
to the doctor that gave me the surgery and was told she saw adhesions in
there on my bowels but didn't remove them because they shouldn't cause
any pain. And that I have no pain tolerance, she could not do anything
for me. I was sent to a pain management center. I was put on very
heavy meds and could barely stay awake anymore. My husband was layed
off and we lost our insurance. I cant afford my doctor or my meds now
and cant get out of bed or leave my house. This has all put a strain on
my marriage. If he were to leave I would be homeless. I cant work. I
just dont want to get out of bed anymore. I am having horrible
withdraws now from all this stupid medication. I feel so
hopeless........