BTW, Have any of you joined the Facebook group for ARD? My niece from Norway joined it in respect for me....there is some good stuff happening there and I know this could be a next step to getting Oprah to notice our plight.
Donna J
_____
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of Tracy S Sent: Sunday, March 01, 2009 5:48 AM To: Multiple recipients of list ADHESIONS Subject: Re: Having a really tough flare-up
Hey Kris,
How did the date go???? Hope today is a good day for you!!! :)
Tracy
--- On Sat, 2/28/09, Kris <krisl1204@yahoo.com> wrote:
From: Kris <krisl1204@yahoo.com> Subject: Re: Having a really tough flare-up To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net> Date: Saturday, February 28, 2009, 6:24 PM
At Sat, 28 Feb 2009, Tracy S wrote:
>
>Hi Kris,
>
>My obstruction were all DX'ed by CAT scan...funny thing is none
of them
have showed up on a regular Xray though. Last weekend I had
another
bout....Throwing up Nausea AWFUL pain....So of course I called my
PC who of
course said go straight to the ER.
>Important piece of info
though...I had just been DX'ed w/ a partial bowel obstruction 10 days before by the SAME ER doctor that saw me last weekend. He order a regular Xray which of course came up with nothing....Came in and told me he was going to send me home with Pain meds and Nausea meds....I question him why he was not doing a CAT scan and he replied that the Xray would show a complete obstruction and I was in no imediate danger. Of course I questioned him and explained none of my other regular Xray's had shown obstructions and they were only visible on the CAT scan., so he explained how having too many CAT Scan's was not good...cancer risks and blah blah blah....so he sent me on my way anyhow. Thinking back I should have insited that keep me but after being there just 10 days before and two weeks before that (which showed nothing that time) and a month before with a colon infection....you begin to think maybe they think your just
looking for
> drugs or something! He offered me pain med which I turned down
explaining
I still had pain med from my discharge 10 days before....Figured
that would cue
him in I was not there just looking for pain meds....I did feel
better a few
days later but I guess it's just the principle of feeling like
you're be
pushed away when you know your pain is real....Ok sorry to be so
long
winded....It's just so nice to have someone to talk to who knows
it's
not all just in my head!!!
>
>Tracy
>Hi Tracy! I just can't believe they wouldn't do surgery after
definitively diagnosing obstructions! Don't you just hate the ER
visits??
The last time i went the first question the nurse asked me when I
got there was
if I was out of my pain meds. I whipped the bottle out of my purse
and showed
her that it had just been filled, but that it was like taking an
aspirin for a
C-Section. She mellowed out a little
after that! I wish you could find a surgeon that would help you. It's so hard to keep trying to talk to doctors and explain your story over and over again.I wish tht none of us had a reason to have to explain the story! Believe me, I know it's not in your head! I feel the same way. I work so hard to keep a normal life. Today is another tough one. Believe it or not, I have a 2nd date with a guy I met through a girlfriend tonight. I'm 53. It seems weird to say date at this age! He knows all about my issues and appears to be understanding. He's been having abdominal pain and! had to go to the ER after we had our first date a few weeks ago! Maybe this is contagious!:) I guess his may be gall bladder. I really don't want to go, but it's all part of the working to be normal as best that I can.We're going out for dinner. oh joy. Eating! I'll just have him take me home early if I can't stand it any more. I'm just hanging
in here until surgery on Tuesday. If this doesn't work, I don't know what I'm going to do.Find a way to cope, I guess. Thanks for your communication and support! I hope your day is going well! Kris
>--- On Sat, 2/28/09, Kris <krisl1204@yahoo.com> wrote:
>
>From: Kris <krisl1204@yahoo.com>
>Subject: Re: Having a really tough flare-up
>To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.obgyn.net>
>Date: Saturday, February 28, 2009, 8:34 AM
>
>At Sat, 28 Feb 2009, Tracy S wrote:
>>
>>Kris,
>>
>>I just wanted to let you know that I sooooo understand how
you're
>feeling!!!! I hope today is a better day for you!!!! Also I just
had to
tell you
>how jealous I am that your having surgery!!!!
>>Sure does sound like a crazy thing to say, but even after 4
partial
bowel
>obstructions and a zillion dr
appts my Dr still says ...NO SURGERY!!!
>>
>>But Tuesday is going to be a good day for both of us....Your
hopefully
>going to get the relief you so deserve and I'm having my first
appt
with a
>NEW primary care DR!!!!! After 10 years of hearing NO....I'll
keep
switching
>if I have to until one of these DR's HELPS ME!!!
>>
>>Your in my thoughts and prayers!!! Be sure to keep us updated!
>>
>>Hugs!
>>Tracy
>>
>>--- On Fri, 2/27/09, Kris <krisl1204@yahoo.com> wrote:
>>Hi tracy! Thanks so much for your kind words and your support.
It's
not
>crazy at all to feel jealous about the surgery. It's the hope
we've
all
>been asking for!When i posted about it, my thoughts were that I
wish i
could
>take everyone with me on this site to this surgeon that I
happened to be so
>lucky to find. I can't
believe they won't do anything after your 4
>partial bowel obstructions! Did they diagnose through some type
of test? I
know
>that I've been through at least 3 of them the last year, but most
of my
>tests have come back normal, except for one CT scan that showed
inflammation in
>the intestinal wall by my gall blader. That showed up on a
Friday, but
since it
>was so close to the weekend, they at least left me in the
hospital on IV
pain
>meds until Monday, when they did a barium enema, but showed no
obstruction.
So,
>off they sent me home again with no answers. I know I had another
bad one
in
>Dec. The runs for about 12 days, with stools finally forming into
pencil
thin!
> ones for another week. After that I felt pretty good for about 3
weeks in
Jan.
>and actually thought about cancelling my surgery. The misery
kicked in
again and
>I'm glad I didn't cancel it.
Please keep looking for a new doctor
who
>will help you. I just thought of something...Maybe it would help
if you
brought
>a couple of the articles along that Mark has shared, the one
about
adhesions
>barriers becoming big business and the other about the Cine MRI.
I think
I'd
>do that if I was still on the doctor hunt. After reading all
ihave on here,
>I've really realized how fortunate that I am to have found this
surgeon
>after only one year. If I didn't have the PCP physician that I
have, I
>wouldn't have ended up here. I hope you're having a pain tolerant
day.
>Thank you again so much for responding to me. Your kind thoughts
and words
mean
>alot! It really helps to have the understanding of others who
know what
I'm
>going through. On the other hand, I really wish none of us had to
deal with
th!
>is! I'll be in touch soon! Kris
>>From: Kris
<krisl1204@yahoo.com>
>>Subject: Having a really tough flare-up
>>To: "Multiple recipients of list ADHESIONS"
><adhesions@mail.obgyn.net>
>>Date: Friday, February 27, 2009, 6:42 PM
>>
>>Hi! I just need to vent as I'm going through a really tough
flare-up.
>As
>>I posted before, I'm having surgery on Tuesday and I cannot
wait.
The
>>nausea has been so bad for the past few days. On Wednesday, I
even
>>puked all over in my car as I was driving home. Yesterday was a
little
>>better, but today is really rough again. At least I haven't
gotten
>sick
>>again. I've got the same pain that all of you go through in
that
>it's
>>like a vice grip is wrapped around my rib cage on my right side.
I can
>>feel these damn things pulling all the way down to my navel. It
always
>>scares me when these flare ups
get so bad. I don't know about you
>guys,
>>but I always worry that it's cancer or something! I have to
remind
>>myself of all the tests that don't show that and remember the
other
bad
>>flare-ups. I have to say I've never actually thrown up before.
I
just
>>need to get through until Tuesday. I'm so hopeful for good
results.
>>It's so hard for family members and friends to understand. I
even
just
>>got crabby on the phone with my poor 83 year old mother. I
never do
>>that! Sometimes it's hard to remain cheerful and positive when
you
feel
>>so bad in spite of trying hard to. Thanks for listening. I
know you
>>all understand! Take care! Kris
>>
>>htm
>
>htm
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