Re: ?How do adhesions grow?

From: Donna Johansen (donnajohansen@telus.net)
Thu Mar 5 13:18:24 2009


Cheryl, Thanks for sharing that. I'm sure it must be hard; it's one thing to have problems with friends but when family is involved it becomes serious. Those of us here know how additionally hard it is to deal with anything beyond the norm. All the best.

Donna

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From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of HERB F DIXON Sent: Wednesday, March 04, 2009 10:46 PM To: Multiple recipients of list ADHESIONS Subject: Re: ?How do adhesions grow?

Hi Donna, I'm still feeling guilty and stupid for getting caught up in the BS on that website. I always beat myself up. I wrote and apologized to Dr. K. he did everything right, and all that he could for me. I would give anything to feel that way again. For about the past 2 weeks after having the flu, cough (omg coughing is the worst) and sore throat crud going around, on my left side where my C-section scar is, it is just really ripping and pulling, sharp and stabbing. I just want to scream. I have been previously contacted by a few people that are disgruntled, and filled with hatred. It just makes you an angry, mean and cold hearted person. I don't have the time for it. After my Mom quit talking with my brothers and I back in 1986, I have tried a few times to contact her, no answer, and did see her at a family funeral a few years ago. Just this past Dec. my Ex Husband died at only 50 my oldest sons Father, and my Mother in Law on the 13th. A few weeks later, I told my Father in law the story, he never knew it. He said just try to reach out one more time, I bet she will hug you, and be so happy to see you. After losing loved ones, I thought I don't want her to pass without things being resolved one way or the other. I wrote a letter, and after 3 weeks I finally mailed it. She called me the day she got it, I figured she was calling to tell me off, and to stay out of her life, just the opposite. We went to see them she and her husband the next weekend. My kids decided not to go, they wanted me to test the waters. She hasn't seen my oldest since he was 2, and never has seen my youngest. It was an awkward meeting, but went well. We will be going up again in 2 weeks and taking the boys that are now 25 and 21. I guess the motto of my story is this, after all of these years her hatred towards us kids is gone. She had quit drinking and was going through a very rough time, my oldest brother decided that she needed to be committed for 3 days to help her through the DT's. When she found out, she never spoke to us again. My brothers don't know yet. I am afraid to tell them. BUT I have to do what is right for me, and it feels so good to have the bad feelings start to go away. that is what they need to do on that website, let their anger go. Cheryl D.

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Date: Wed, 4 Mar 2009 13:53:07 -0600 From: donnajohansen@telus.net To: adhesions@mail.obgyn.net Subject: Re: ?How do adhesions grow?

Hi Cheryl, I was within days of heading to Germany when I read that site....I have absolutely never felt so devastated, cold and horrified. Then I spoke with women who went, had success, and nothing but rave reviews. That was my experience. The staff are nothing but truly professional, caring and the food I crave still. As for the success of surgery...I am alive and although some symptoms are coming back they are nothing like before...the way I feel is that I probably wouldn't have made it to the end of 08 and my quality of life is so much better. My kids have a mother now and that means everything to me. Everyone I spoke with told me the people who did this site were disgruntled patients ( as we know these surgeries do not guarantee anything) and one of the women wanted to connect personally with one of the medical people ( no names here ) and that didn't happen. She was a woman scorned and there is nothing like that apparently! I heard this from a woman who was in Germany at the same time that this happened.

Donna J

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From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of HERB F DIXON Sent: Saturday, February 28, 2009 2:00 PM To: Multiple recipients of list ADHESIONS Subject: Re: ?How do adhesions grow?

Hi Sarah, I am at this point so confused, distraught, and devastated about all that I have just read about Spray Gel, Dr. Kruschinski and his procedures. You can go to all lower case ihrtblogspot.com. At the website you can read about Spray Gel, Dr. K, Sprayshield, etc. I was told that when I got hurt that the impact caused internal bleeding which in turn causes more adhesions. Yet now they are saying that Spraygel has and is causing the return of adhesions. I feel betrayed, lied to and like I have just been kicked in the gut! It is bad enough that we are all dealing with this dreadful illness. If what is being said is true on this website, the patients that went to him for surgery were so desperate for a cure, that they went to him, and were basically ripped off? I guess what they say is true " If it sounds too good to be true, it usually is". OUCH. Sarah bless you for saying what you did today. I guess that I am just NOT ready for the truth, I feel like such a FOOL! GTG, want to do more reading, plus I believe that I need to have my name removed from the Endogyn website. I feel like such an idiot for singing his praises to other perspective patients. Take Care, Cheryl D.

>----- Original Message -----
From: sarah.wampler@yahoo.com To: Multiple recipients of list <mailto:adhesions@mail.obgyn.net> ADHESIONS Sent: Saturday, February 28, 2009 1:04 PM Subject: Re: ?How do adhesions grow?

Hi Cheryl, I have done some research by simply googling Spraygel and/or Sprayshield. I have read some things about Spraygel possibly causing scarring in some patients....possibly due to the methylenblue dye used to color it. I am not saying this is the case, just what I have read. >From my research I have found that Sprayshield has a quicker
absorption time and does not have methylenblue in it. Don't quote me on any of this :o) it's just from research I have personally done. I have spoken with Dr. Redan about it and he is very excited about these clinical trials with Sprayshield....hoping this is great news for people suffering from adhesions. I hope this helps....feel free to email me if you have any questions!!! Adrienne or Paulette at CAPPS/Dr. Redan would probably have more specific information. Calling them and asking for info certainly doesn't obligate you to be a patient there or anything....I'm sure they would be happy to help and provide any info they can... Sincerely, Sarah At Sat, 28 Feb 2009, HERB F DIXON wrote: >
>Hi Sarah, I am so curious about what problems were found with
Spraygel since it was used on me back in 2005. Do you know where the information came from about Spraygel, or where to look up the info on it? Hey thanks so much for posting the info about it. I am also now very curious about Sprayshield, and would love to get involved in clinical trials. Thanks much! Cheryl D. >

>>> ----- Original Message -----
> From: sarah.wampler@yahoo.com
<mailto:sarah.wampler@yahoo.com%3Cmailto:sarah.wampler@yahoo.com> <mailto:sarah.wampler@yahoo.com> > To: Multiple recipients of list

ADHESIONS<mailto:adhesions@mail.obgyn.net> > Sent: Saturday, February 28, 2009 11:10 AM
> Subject: Re: ?How do adhesions grow?
>
> Hi Lou!
> Glad to see you on the board!! I just wanted to clarify that
Dr. Redan > is doing clinical trials on Sprayshield not Spraygel. There
seems to > have been some problems with Spraygel so Sprayshield is the new
and > improved version of Spraygel. Spraygel was never FDA approved
for use > in the US (I'm assuming due to the problems with it?) so

hopefully > Sprayshield will not have those problems and will be approved
for use > here in the US. For further information on the trials with Dr.
Redan > you can contact either Paulette or Adrienne via the
> http://www.adhesionscenter.com
<http://www.adhesionscenter.com%3chttp//www.adhesionscenter.com/> <http://www.adhesionscenter.com/> website by filling out the form on there. Best > of luck to you!
> Sincerely,
> Sarah
> At Sat, 28 Feb 2009, LOU COOPER wrote:
> >
> >Hi Cheryl. is the pain you have now the same pain before you
went to Germany? > >I was wondering about the spray gel did you have it?
> >I read that Dr Raden was doing adhesion surgery with spray gel
on a trial basis. > >Cheryl, I hope you do not mind if I ask you, what are you
going to do, > >will you have
> >more surgery.?
> >I am having surgery in June to have the hernia mesh taken out,
I have > >been told its likely
> >due to having adhesion's in that area +the mesh is also giving
me problems > >the meds I'm on are Hydromorphone 1mg, Lorazepam 1mg and

gravol for the nausea, > >I take the 3 together 1 hyd----a half of lorazepam and half
of > >gravol and it works well on me
> >yours on that road
> >Lou
> >Just had a thought, it would be nice if we had a logo------
breast > >cancer has the pink ribbon +
> >many other people with health issues have theirs, with this
hidden > >illness it would make people be aware of us
> > the greatess tool of today is advertising ,the adhesion

problem is to hidden, > >maybe someone out there might have a great a idea.
> >L
> >
> >On Sat, Feb 28, 2009 at 12:12 PM, HERB F DIXON
<herbcheryl1@msn.com <mailto:herbcheryl1@msn.com%3Cmailto:herbcheryl1@msn.com> <mailto:herbcheryl1@msn.com>> wrote: > >> Hi Lou, I went to Germany in 2005. I will say that their
nurses were > >> awesome, the food was great! I would love to know how they
made their beef > >> broth it was so good and flavorful. I have been contacted by
many people > >> interested in going to Germany for surgery, I wish that once
they did go > >> over to have their surgeries that they would continue

contacting either me, > >> or the website just to see how they have done post op. I am
in constant pain > >> again, you know the sharp stabbing knife under the ribcage,
the ripping and > >> tearing before during and after bowel movements, doubling
over, the almost > >> contraction like pain that hits hard and doubles you over,
subsides for a > >> few min. and starts all over again. I still live on

Percocet, and methadone. > >> I was on morphiene for a while. My husband said I would quit
breathing, then > >> gasp and jerk for air. I took myself off of it, and it was
pretty easy to do > >> so. I would also fall asleep in a matter of seconds: at the
computer, > >> standing at the washer with my head leaning against the lid,
the best and > >> most comical was falling asleep on the toilet, then one
night I actually > >> fell off (LOL) So many people have their stories of their
doctors not > >> believing them, mine too. In fact he wants me to read a
book, I don't > >> remember what it is called but it basically refers to that
it may be in my > >> mind. ( Gee thanks) Like everyone else too, I wish for a med
that will > >> actually kill the pain, and that when I call in for refills
I am not treated > >> like a drug addict. I am also on Prozac 30 mg. for

depression. You know if > >> "Someone Important" like a movie star etc. had adhesions and
dealt with life > >> the way we do, someone would be right on top of it to help
them. I had > >> another bad night so I do need to get back to my best friend
the heating > >> pad, and my little pillow that I use when I am doubling over
and trying to > >> walk. Good luck to you. Cheryl D.
> >>
> >>> Date: Fri, 27 Feb 2009 23:43:45 -0600
> >>> From: louc829@gmail.com
<mailto:louc829@gmail.com%3Cmailto:louc829@gmail.com> <mailto:louc829@gmail.com> > >>> To: adhesions@mail.obgyn.net
<mailto:adhesions@mail.obgyn.net%3Cmailto:adhesions@mail.obgyn.net > <mailto:adhesions@mail.obgyn.net>
> >>> Subject: Re: ?How do adhesions grow?
> >>>
> >>> What year did you go to Germany,
> >>> am sorry that you had a few unfortunate experiences and yes
does cost > >>> alot to go to Germany,
> >>> it makes no sense that the spraygel is made in the US and
is not used > >>> by the Drs,
> >>> look at the money that would be saved, and the people it
would help > >>> who suffer with
> >>> adhesion's, what is wrong with the FDA, its sold in other
country's, > >>> just think one could go locally to have adhesion surgery
with sraygel > >>> are you in pain now?
> >>> Take care
> >>> Lou
> >>>
> >>> On Fri, Feb 27, 2009 at 11:50 PM, HERB F DIXON
<herbcheryl1@msn.com <mailto:herbcheryl1@msn.com%3Cmailto:herbcheryl1@msn.com> <mailto:herbcheryl1@msn.com>> > >>> wrote:
> >>> > Dr. Kruschinski did my surgery in Germany. If I could
ever come up with > >>> > the
> >>> > money again, I would go back and try again. I had a few
unfortunate > >>> > experiences getting hurt 7 weeks post op, returning to
work way too soon > >>> > because the pressure was on, and then had my Gallbladder
removed. The > >>> > nicest
> >>> > thing was in Germany, they do not use gas to extend your
abdomen. When > >>> > you
> >>> > are recovering, you don't deal with the awful gas pain
that feels like > >>> > someone is sticking a shovel in your shoulder. The

saddest part for me > >>> > is
> >>> > that I will never completely know the results of my 2
surgeries because > >>> > of
> >>> > circumstances. My stomach no longer sucks in and gets
stuck so that is > >>> > positive. I feel the reason more and more patients are
dealing with > >>> > adhesions is because the Surgeons are in way too much of
a hurry and > >>> > that
> >>> > also they are not cleaning out the area with the Saline
as well as they > >>> > should too. It is so hard to be so miserable in pain all
of the time. > >>> > Since
> >>> > Confluent Surgical (the company that invented Spray Gel)
is in the U.S. > >>> > that
> >>> > they would catch some sort of a BREAK with the F.D.A.
Good luck, Cheryl > >>> > D.
> >>> >
> >>> >> Date: Fri, 27 Feb 2009 19:26:51 -0600
> >>> >> From: louc829@gmail.com
<mailto:louc829@gmail.com%3Cmailto:louc829@gmail.com> <mailto:louc829@gmail.com> > >>> >> To: adhesions@mail.obgyn.net
<mailto:adhesions@mail.obgyn.net%3Cmailto:adhesions@mail.obgyn.net > <mailto:adhesions@mail.obgyn.net>
> >>> >> Subject: Re: ?How do adhesions grow?
> >>> >>
> >>> >> Who did your surgery in Germany?
> >>> >> Lou
> >>> >>
> >>> >> On Fri, Feb 27, 2009 at 6:39 PM, HERB F DIXON
<herbcheryl1@msn.com <mailto:herbcheryl1@msn.com%3Cmailto:herbcheryl1@msn.com> <mailto:herbcheryl1@msn.com>> > >>> >> wrote:
> >>> >> > Hi Mark, all I know about adhesions is that Gas being
used to extend > >>> >> > the
> >>> >> > abdomen for surgery causes it, a speck of talc off of
gloves, a piece > >>> >> > of
> >>> >> > whatever is used to absorb blood during surgery. I
have had 11 > >>> >> > abdominal
> >>> >> > surgeries. When I had 12 inches of my colon removed
for > >>> >> > Diverticulitis,
> >>> >> > that
> >>> >> > is when my adhesions started. Before that surgery in
2002, I had 2 > >>> >> > c-sections, hysterectomy, one ovary, and then the
other, tubal and > >>> >> > exploratory. It was when my bowel was messed with that
they started 2 > >>> >> > weeks
> >>> >> > after surgery. The Lysis surgery I had in Germany, my
large, and > >>> >> > small
> >>> >> > intestine were stuck to my colon, my stomach was

literally sucked in > >>> >> > and
> >>> >> > stuck, it was physically noticeable, it blew my Gastro
away. I was > >>> >> > also
> >>> >> > told
> >>> >> > that I had remnants of my ovary left behind with a
cyst on it on my > >>> >> > right
> >>> >> > side. It was not that at all, it was a mass of

adhesions. I am one of > >>> >> > those
> >>> >> > people that are a bit hyperactive. When I have had all
of my > >>> >> > surgeries,
> >>> >> > I
> >>> >> > find tricky ways to clean the house, dust, cook etc. I
feel that > >>> >> > because
> >>> >> > of
> >>> >> > being active too soon after surgeries contributed to
my adhesions. I > >>> >> > only
> >>> >> > hurt myself! I have promised myself that If I ever
have another > >>> >> > abdominal
> >>> >> > surgery for adhesions, I will sit on my rear end, or
lay down and > >>> >> > rest
> >>> >> > until
> >>> >> > I am well. That is a Big if on a surgery again. I hope
this helps. > >>> >> > Cheryl D.
> >>> >> >
> >>> >> >> Date: Thu, 26 Feb 2009 15:02:57 -0600
> >>> >> >> From: mark7@skynetbb.com
<mailto:mark7@skynetbb.com%3Cmailto:mark7@skynetbb.com> <mailto:mark7@skynetbb.com> > >>> >> >> To:
>adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>
> >>> >> >> Subject: Re: ?How do adhesions grow?
> >>> >> >>
> >>> >> >> At Thu, 26 Feb 2009,
>Natrlady21@aol.com<mailto:Natrlady21@aol.com> wrote:
> >>> >> >> >
> >>> >> >> >Does anyone know what makes existing adhesions

continue to grow > >>> >> >> > (spread)?
> >>> >> >> > By
> >>> >> >> >doin certain activities etc. Are there professional
articles that > >>> >> >> > talk
> >>> >> >> > about
> >>> >> >> >this?
> >>> >> >> >
> >>> >> >> Mark writes:
> >>> >> >>
> >>> >> >> Without a source of inflammation, I don't think

adhesions can > >>> >> >> spread.
> >>> >> >> Sources of inflmmation include: surgery,

endometriosis, radiation. > >>> >> >>
> >>> >> >> If you don't mind a little conjecture, I've had email
correspondence > >>> >> >> from two women who claim ahdesions have formed for
none of these > >>> >> >> reasons. Just spontaneous formation. I have no reason
to doubt their > >>> >> >> word. So who knows? I have skin eczema which is a
spontaneous skin > >>> >> >> inflammation that I can't seem to stop. My skin will
literally ooze > >>> >> >> liquid for no good reason. So maybe that happens on
the inside of my > >>> >> >> body, too.
> >>> >> >>
> >>> >> >> Your question, however, may have to do with something
else we hear > >>> >> >> on
> >>> >> >> this forum quite a lot. We often hear reports from
people saying > >>> >> >> that
> >>> >> >> their doctor has observed adhesions "in greater

numbers" than > >>> >> >> observed
> >>> >> >> in the same patient in a previous surgery. Also many
people will > >>> >> >> make a
> >>> >> >> statement like, "I had surgery to clean out my

adhesions, but they > >>> >> >> grew
> >>> >> >> back in greater numbers." or They will say "their
back." This could > >>> >> >> mean
> >>> >> >> simply that the doctor released the pressure but
cutting an > >>> >> >> "offending"
> >>> >> >> adhesion, but the wounded adhesion oozes more fibrin
and reconnects > >>> >> >> immediately after surgery. Time passes, the body
shifts and the same > >>> >> >> adhesion comes under tension again, resulting in
discomfort. > >>> >> >>
> >>> >> >> I hope this helps. But of course, I know it's not a
sufficient > >>> >> >> answer.
> >>> >> >> I'm probably touching on the truth, but I know I'm
not quite there. > >>> >> >> The
> >>> >> >> truth is that I think nobody can fully explain this
awful disease to > >>> >> >> my
> >>> >> >> satisfaction. For example, I have yet to hear a good
explanation of > >>> >> >> how
> >>> >> >> temporary fibrin deposits can then turn into a

permanent adhesion. > >>> >> >> I'm
> >>> >> >> not satisfied with the explanation that fibrin is the
only protein > >>> >> >> involved. I think there's another process at work.
See wikipedia > >>> >> >> article on 'wound healing.' for more info. I haven't
read it all. I > >>> >> >> get tired easily. Maybe someone else can explain it
better. > >>> >> >>
> >>> >> >> Yours,
> >>> >> >>
> >>> >> >> Mark in Seattle
> >>> >> >>
> >>> >> >> to the unsubscribe form at
> >>> >> >>
>http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions
.org/forums/listcmds.htm> > >>> >> >
> >>> >>
> >>> >
> >>>
>http://www.adhesions.org/forums/message.htm<http://www.adhesions.
org/forums/message.htm> > >>
>
> to the unsubscribe form at

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