>> ----- Original Message -----
> From: krjmarketing@yahoo.com
> To: Multiple recipients of list ADHESIONS
> Sent: Monday, March 09, 2009 9:47 PM
> Subject: Re: please help! (for Kelly)
> This is long but its my story for those who want to read it. I had 3 scopes
> for endometriosis removal and lysis of adhesions. After my third surgery and
> being told that my tubes were blocked and my ovaries were severely damaged
> and constant cysts and reocurring endo I had a full hysterectomy.
> Unfortunately it wasn't the answer and I ended up in the emergency room a
> year later with massive pain and through a vaginal ultrasound they found
> cysts and an ovarian remnant along with the likelyhood of endo again. I then
> was referred to an Oncological gyno and he recommended another lap. They
> both did the surgery and I ended up with a bowel resection too. The
> adhesions were worse than ever too. Three years later I became desperate and
> went back to the Oncological Gyno and he refused to do anything. I
> researched and found a doctor who specialized in adhesions, scopes and endo.
> He did the surgery I asked for and unfortunately I ended up in a bowel perf
> and four days later I was admitte!
> d and had emergency surgery. The doctor said it took two hours to get
> through the mess and cut away adhesions to do the repair. Two weeks ago and
> almost four years of pain and suffering and a recent surgery for gall
> bladder, I had surgery to repair a hernia that turned into major multi
> hernia repairs. I believe that my gall bladder was affected by all of this
> because it literally just stopped working...no stones just 11% capacity. I
> am not sure he would have gone in if it wasn't for the hernia and risk due
> to concerns for more adhesions but he now shows far more sympathy to me for
> what he found in there. Only time will tell how successful this was. Long
> answer but now my story is shared. I have cried intensely and have even
> attempted to end my life for all of the pain and affect on my life. I have
> wished I wouldn't wake up and even prayed I would just die. But, I have an
> adopted daughter who is six and I know I have to be here for her. It is so
> hard some days and I feel hop!
> eless. Without drugs I don't know if I could go on. Adhesions are bad,
> but struggling to use your "plumbing" is the worst of it all. I go from
> diarrhea to not at all and rely on medication for both. No one should have
> to suffer so much. I sometimes wish I didn't go through with all the
> surgeries because the threat to the bowel is really not worth it. I am
> hoping that I will really be better now, but so far none of the surgeries
> have gotten me better. Now plumbing doesn't work and apparantly I have to
> now worry about hernias returning. I don't mean to sound hopeless for
> everone but I hope that all of you really consider all of the risks. Use me
> as proof of what could happen with surgeries. My heart goes out as I know
> I am one of the worst cases of adhesions. I have been studied and
> documented.
>
> Kelly
> Ps I was 25 for my first surgery, 29 for the hysterectomy and am 35 now. So
> 9 surgeries in 10 yrs.
> ------Original Message------
> From: KatieSender: adhesions@adhesions.org
> To: Multiple recipients of list ADHESIONS
> ReplyTo: adhesions@adhesions.org
> Subject: Re: please help! (for Kelly)
> Sent: Mar 9, 2009 7:36 PM
>
> Kelly,
>
> Were all of your 9 surgeries for adhesion removal?????
>
> Katie
>
> At Mon, 9 Mar 2009, krjmarketing@yahoo.com wrote:
>>
>>I have had 9 surgeries now and no CT scan has ever
> shown the massive mess of adhesions found. My surgeries
> began with suspect Endometriosis and several years of complaints.
> Cysts were the secondary reason for going in to remove endo.
> My point is that in my case no tests or scans ever show the
> issues well. But I did have some success with vaginal ultrasounds.
> This showed organs pulled together, etc. It showed my ovary literally
> bent back and stuck to bowel. I wanted to scream then. You need
> a caring and knowledgeable GYN. Kathy Maupin in St. Louis has
> suffered with our fate, so she really cares about her patient's
> lives. Maybe some of you might consider St. Louis for help. My
> surgeon is Michael Smith and he is caring and very skilled. He just
> did my mutliple hernia surgery and removed adhesions in areas
> I complained of. It was done laparoscopically and at two weeks
> today I feel amazingly well (so far). I am sorry so many of
> you can't find the right help. We are really blessed with many
> amazing doctors here.
>>
>>Kelly
>
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