I read your dilemna which sounds very much like mine, and incidentally I am also Canadian, however live on the other side of Canada. I am pasting some interesting literature that I read, which you might find useful.
In November last year I went to visit my GP who put in a request for an appointment with a specialist for me, well I am still waiting. i am supposed to have annual scopes but of course am lucky if I get in every 3 or 4 years.
I am experiencing enormous discomfort, not ... pain especially when I sit down on a low chair, the burning sensation is unbarable but I have been told to stretch and it should relieve it [obviously from some smart ass who has not ever experienced this pain] however here are the sites
http://www.adhesions.org/images/DearBenefitsOfficerLtr_fromIAS..pdf
http://www.thirdage.com/encyclopedia/lysis-of-adhesions-cutting-adhesions-adhesiolysis
http://www.adhesionrelateddisorder.com/BJD-Picture-Trail.html
I am truly hoping to get some sort of relief, because it is definitely not getting any better and is quite debilitating
take care
On Tue, Mar 10, 2009 at 8:46 AM, Geri <ontariocrafter@yahoo.ca> wrote:
>
> Thanks Linda.. I will ask My doctor to check into this... Geri
>
> ------------------------------
> *From:* Linda <lindahalford@comcast.net>
> ------------------------------
> *To:* Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>
> ------------------------------
> *Sent:* Monday, March 9, 2009 2:11:54 PM
> *Subject:* Re: ANOTHER CANADIAN HEARD FROM.....
>
> Geri, I had two hernia repairs but mesh didn't hold. Dr. Sevin, Mayo
> Clinic, Jacksonville, FL used a double layer of Dura Mater to secure my
> abdomen and I haven't herniated since. He also used it on my friend who had
> herniated a few times. He taught doctors at the University of Miami for
> many years before coming to Mayo Clinic. I don't know if he's still using
> Dura Mater to secure hernias but if interested, you could contact him. Good
> luck.
> Linda
>
>> ----- Original Message -----
> *From:* Geri <ontariocrafter@yahoo.ca>
> *To:* Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>
> *Sent:* Sunday, March 08, 2009 8:32 PM
> *Subject:* Re: ANOTHER CANADIAN HEARD FROM.....
>
> Hi Lou...
> My Bowel Perforated in Feb 2000...(What a way to start New Millenium..)
> complete with Septic Shock and a tempprary colostomy.. and Hartman's
> Procedure to reconnect bowel in September 2000...
>
> Have had 2 Hernia repairs since.. both didn't last... and NOW need a major
> hernia repair.. (but I am avoiding it...)
>
> I have had pain ever since it all healed.. it was delayed closure.. No time
> to close in the OR as I was dying and needed to get in ICU and on life
> support..
>
> Spent 2 days in ER last week and NOT one Physican mentioned possibility
> that pain was from Adhesions.. I got a million and one other suggestions
> including a triage nurse who said I was probably just constipated... and let
> me sit in a wheelchair for 3 hours...I didn't get any attention until I
> nearly passed out....
>
> Ontario Health Care has sure changed in the last 20 years... So Sad... A
> wonderful system gone bad from abuse and fraud....
>
> Now if you are low income you can't get good care... It is DEFINITELY a 2
> Tier System...(I was a social worker who had to quit work as I was just too
> sick...)
>
> Geri
>
> ------------------------------
> *From:* Lou <louc829@gmail.com>
> ------------------------------
> *To:* Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>
> ------------------------------
> *Sent:* Sunday, March 8, 2009 7:10:50 PM
> *Subject:* Re: ANOTHER CANADIAN HEARD FROM.....
>
> At Sat, 7 Mar 2009, Geri wrote:
> >
> >Hi...
> >I am new to the site, but not the pain...
> >Geri
> >Ontario, Canada
> >
> >________________________________
> >From: LOU COOPER <louc829@gmail.com>=0ATo: Multiple recipients of list
> >________________________________
> ADHESIONS <adhesions@mail.ob> >a
> >
> >________________________________
> >From: LOU COOPER <louc82gyn.net>
> >________________________________
> >Sent: Saturday, March 7, 2009 9:54:15 PM
> >Subject: Re: The way to go!!!
> >
> >Hi Donna, from Lou,
> >I am so sorry that you are having so much adhesion pain again, will
> >the Dr. in Germany,
> >be able to help you again,
> >No one should face pain alone, you need the love and support of your
> >family, sometimes things
> >do not work out as we wish and it not your fault, do not go alone.it
> >grieves me that you are suffering
> >alone in silence, this kind of surgery their are no guarantees as you
> >well know by reading the story's
> >on the adhesion site
> >Take care, Lou
> >
> >l
> >On Sat, Mar 7, 2009 at 2:11 PM, Donna Johansen <donnajohansen@telus.net>
> wrote:
> >> Lou,
> >> My surgeon tells me there are surgeons in Canada who will do it
> >> but they are not capable of doing it properly and the adhesions
> >> all come back with a vengeance..which we all know has a good
> >> percentage of being fact. I personally know of one other local
> >> woman (I live in a very small town) who has surgery every 6 months
> >> to take them down. She was desperate a year ago, but I didn't
> >> know about this IAS and can't remember her name. One year ago I
> >> was completely alone in this, thinking I must be the only one
> >> having to live in absolute pain. I know others exist out there,
> >> suffering the only way they know how, in silence.
> >>
> >> Germany was great for me but I am having a real hard time right
> >> now. Three weeks after returning I had a terrible fall. I have
> >> bad arthritis and my knees don't respond like they should. We
> >> were on our sailboat (45 footer) and I fell from the cockpit to
> >> the bottom of the outside walkway. A long fall on a big boat. I
> >> still suffer with the injuries on my arms and legs. Dr. K was
> >> concerned about this fall and I remember reading literature about
> >> falling so close to surgery...that adhesion growth could start
> >> again with the injury. Interesting thing is that I have been on
> >> large doses of Celebrex for the arthritis and my adhesion problems
> >> seemed to be relatively minor last fall to recently. I have
> >> continued to have painful and irritable bowel problems that are
> >> now worse. Over a month ago I couldn't afford the Celebrex and so
> >> have suffered with arthritis and NOW for the last three weeks I AM
> >> SUFFERING WITH ADHESION PAIN AGAIN that keeps me awake or wakes me
> >> before normal people should be awake! I am desperate to try to
> >> reverse it and have doubled up on the Celebrex thinking that is
> >> perhaps the reason for this reversal. I can't tell you how
> >> devastated I am if this doesn't clear up...my family have all
> >> sacrificed so much....I don't think I can tell them so I suffer in
> >> silence.
> >>
> >> Donna
> >>
> >> -----Original Message-----
> >> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On
> >> Behalf Of Lou
> >> Sent: Saturday, March 07, 2009 9:14 AM
> >> To: Multiple recipients of list ADHESIONS
> >> Subject: Re: The way to go!!!
> >>
> >> At Thu, 5 Mar 2009, Donna Johansen wrote:
> >>>
> >>>Canada is the worst...Europe is probably the most aware and has
> >> help
> >>>too. I am not a hateful person but I hate my former surgeon who
> >>>absolutely turned his back on me. Our medical system is mostly
> >> great
> >>>but this is something else!
> >>>Donna
> >>>HI DONNA FROM LOU MAR 7TH 11.48am
> >> I FEEL THIER MUST BE A GOOD ADHESION LAP SCOPE SURGEON IN CANADA
> >> SOMEWHERE, BUT TRYING TO FIND ONE ITS JUST IMPOSSIBLE, YOU SAID
> >> YOU WENT TO GERMANY AND ARE FEELING BETTER.
> >> THE THING I FIND STRANGE ARE WE THE ONLY TWO IN CANADA WITH THIS
> >> PROBLEM,NEVER HEAR ON THE IAS OF MANY OTHERS WRITNG IN ,IF THAY
> >> DID MIGHT FIND OUT MORE ANSWERS. I ENVY THE GIRLS IN THE US, SO
> >> MANY GOOD DRS THAT DO ADHESION SURGERY LOU
> >>
> >>>-----Original Message-----
> >>>From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On
> >>
> >>>Behalf Of Lou
> >>>Sent: Thursday, March 05, 2009 1:32 PM
> >>>To: Multiple recipients of list ADHESIONS
> >>>Subject: The way to go!!!
> >>>
> >>>HI, THIS IS THE WAY TO GO, IT HAS TO CAME FROM YOU GUYS WHO ARE
> >>>SUFFERING FROM THIS AWFUL PROBLEM + THE ONES THAT HAVE BEEN
> >> CURED,
> >>>THEIR ARE SOME FINE STORY'S TO BE TOLD ( WHAT ABOUT THE IBS
> >> QUIT),IF
> >>>THIS IS NOT TOLD, WHO WILL KNOW WHAT SUFFERING THEIR IS FROM FROM
> >> ABD
> >>>ADHESIONS.
> >>>THE SQUEKEY WHEEL, AND ALL THAT MOST TIMES IT WORKS, BUT IF WE
> >> REMAIN
> >>>SILENT, NOTHING WILL BE DONE, DIVIDED WE FALL UNITED WE RAISE.
> >>>LOOK AT TERRY FOX AND WE ALL KNOW WHAT HE DID AND TODAY ITS STILL
> >> GOING
> >>>ON, TO ALL DRS AND SURGEONS OUT THERE HOW DO NOT KNOW, ADHESIONS
> >> DO
> >>>CAUSE PAIN, PAIN AND MORE PAIN + ALL THE STUFF THAT GOES WITH IT,
> >> THE
> >>>UPSET GUT THAT NEVER GOES AWAY, THE FOODS WE LOVED TO EAT AND NOW
> >> CAN
> >>>NOT.
> >>>ONE DAY YOUR LIFE IS GREAT - THE NEXT YOU CAN BE IN LIVING HELL,
> >> THIS
> >>>CAN HAPPEN TO ANY ONE, YOUNG OR OLD AT ANY TIME, LET HOPE AND
> >> PRAY A
> >>>CURE CAN BE FOUND SOON AND ADHESION WILL BE A THING OF THE PAST,
> >> I ENVY
> >>>YOU GUYS IN THE USA, YOU DO HAVE ALOT OF GOOD SURGEONS THAT DO
> >>>LAP-SCOPE SURGRERY FOR THE REMOVEL OF ADHESIONS, I LIVV IN
> >> CANADA, NOT
> >>>ONE CAN BE FOUND I HAVE TRYED THE WEB, HOSPITALS +++ALL I FIND IS
> >> A
> >>>BRICK WALL, GOOD LUCK TO ALL WHO TRY TO GET ADHESIONS INTO Tn see
> >> http://www.adhesions.org/forums/message.htm
> >>
> http://www.adhesions.org/forums/listcmds.htm
>
> --
> HI GERI
> WELCOME, NICE TO HEAR FROM YOU, THAT MAKE'S THREE OF US, I HOPE MORE WILL
> ,
> WRITE IN. ALSO IF YOU DO NOT MIND IF, I ASK YOU, WHEN DID YOU HAVE SURGERY,
> AND WHAT PROBLEMS ARE YOU HAVING WITH ADHESIONS
> ALL THE BEST---LOU
>