Re: feeling hopeless......

From: Jess (jessicab_2878@yahoo.com)
Wed Mar 18 08:01:47 2009


Thanks Christi....I have been that route with endo as well. I was loaded with it prior to my hysterectomy. My doctor did look when we did a lap last March, and there were no signs then. My pelvis was totally clean for the first time. I do have barriers, and those were still intact and in place. My doctor has mentioned maybe doing another lap being that it has been a year since the last one, but we are both kind of weary due to the pelvis being clean, and when you operate its just a feeding ground for more adhesions. I am trying to shy away from that procedure as much as possible. I will definatley do some research on the doctors you mentioned, maybe if i get out of the state of New Hampshire someone can find a reason for this wicked pain I live with everday.It is soooo frustrating. until I found this site, I really thought i was the only oddball with so many adhesion issues. it is nice knowing I am not alone, not so nice knowing someone else has to suffer though. I wouldn't wish this on my worst enemy. Thanks again for your input!! Love and Light, Jess

At Wed, 18 Mar 2009, Christi wrote: >
>Jess-I'm so sorry you have to go through all this. My only suggestion is to
>maybe research endometriosis. I had that, it doesn't show up on any normal
>tests and most ob/gys, unless they are specialists, do not know how to treat
>it much less recognize all the symptoms. A hysterectomy will NOT help
>endometriosis if it is anywhere outside of female organs. From my extensive
>research, the only way to completely get rid of endo is to have it excised
>(not burned away) either through traditional tools or with lasers used as
>cutting tool not burning whole pelvic wall. This is all done laparoscopicly,
>of course. With the use of adhesion barrier and floating organs and cavity
>with saline to prevent any more adhesions. I had the added removal of
>adhesions and huge surgery to correct prolapse problems I had from
>hysterectomy this past year. Dr. Sinervo assisted my main surgeon in
>detaching any adhesions and found no more endometriosis. Very good news.
>
>The Dr I used for the endometriosis removal is Dr. Albee. Excellent doctor!
>I cannot say enough about him. He or his partner Dr. Sinervo (who is also
>good) will review your medical records for free:
>http://www.centerforendo.com/
>And another good one is Dr. Redwine. He will review your medical records for
>a fee. I almost went to him but he was too far away.
>http://www.endometriosistreatment.org/
>
>Hope this helps some.
>Much Grace and Peace to You.
>Christi
>
>-------Original Message-------
>
>From: Jess
Date: 03/18/09 07:01:13 >To: Multiple recipients of list ADHESIONS
>Subject: feeling hopeless......
>
>I was hoping that maybe some of you may have some more suggestions... I
>am beginning to feel like a helpless and hopeless cause. Last March was
>my last laporoscopy to search for adhesions. Been having chronic pain
>in my right lower pelvic for about 23 months now. The lap in March
>showed no adhesions, yet it still feels like adhesion pain. I have had
>14 operations in the past 10 years, including a full hysterectomy due to
>adhesions.
>It was a blessing to think that maybe I beat the adhesion problem, but
>now the doctors can't find a source for the pain. I have been dealing
>with my OB doctor, a neurologist, and a pain management specialist. All
>of whom are at a dead end road.
>We have done an MRI of the brain because my dad has MS, and having a 1st
>degree relative increased my chances of brain lesions...well the MRI was
>normal. Tried an illiolingual block, didn't cure anything. I am on a
>daily medication regimen for pain, and find that the only thing I am
>getting from that is probably an addiction. its been 23 months of pain
>med treatment as well. My team of doctors are clueless as to where to
>go next...just they all seem to agree to keep me on the pain meds.
>I was just hoping that maybe some of you may have other suggestions of
>things you have done or tried in the past, that maybe I could research,
>and just bring up to the docs.
>This feeling of fighting a losing battle is wearing me down. I will be
>31 on the 28th, and I feel that the fighting of this for the past 10
>years has really kicked my butt, in my mind, I say don't give up, but my
>body can't handle this anymore. My kids are living a nightmare with me
>cuz of this, and I don't think its fair, right, gosh, I could go on
>forever. So please help me if you can!!!
> thanks for taking the time to listen.
> Blessings,
> Jess
>
>e.htm


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