On Sun, Mar 22, 2009 at 7:36 PM, Donna Johansen <donnajohansen@telus.net> wrote:
> Lou,
> Thank you, thank you...today is another bad day and I don't want
> to say anything to my family....so tired of hearing myself and I
> am sure they are tired of hearing me! After my adhesion surgery in
> 2001 and again last year, I woke up with no overall adhesions pain
> but definitely this persistent pain on my left side. The nurses
> were really pissed at me when I started to cry saying they didn't
> get it. I was in a state of panic both times. This pain I'm
> having could definitely be something else. Dr. K looked hard and
> long for adhesions in the area of my sharp throbbing pain on my
> left side. He said it was not adhesions but that I should look
> into a hip problem. It makes sense as the pain radiates through
> to my bum and down my leg. Only problem, my doctor is sick of
> hearing me complain about pain and won't really look into what is
> wrong. I do have adhesions around my bowels but not like the ones
> he cut out.
> I don't know, I'm at my wits end with it and wish I could just
> forget it all. How can I when the pain is so difficult to endure?
> Thanks for your thoughts.
> Donna J
>
> -----Original Message-----
> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On
> Behalf Of LOU COOPER
> Sent: Saturday, March 21, 2009 7:47 PM
> To: Multiple recipients of list ADHESIONS
> Subject: Re: Adhesion Barriers Survey
>
> Hi Donna,
> How's your pain,I am thinking of you, their are days when its just
> hell, but reading the news about adhesion barrier's,I think we are
> on the verge of big things, your pain my be due to something else
> and if the Dr have to look inside at a future date,we will be
> protected.
> Haemcure is a name of a corporation based in Montreal,Ispoke to
> one of the V.Ps of this company, he told me that thy had developed
> a fibrin sealant, which worked on
> 151 people but is not ready for the market, I thing he did tell me
> that a adhesion barrier for kids that have heart surgery, has been
> FDA approved for use in the U.S and Canada, one small
> step!!!!!!!!!!
> Take care, Donna, remember you are not alone.
> Lou
>
> On Sat, Mar 21, 2009 at 2:33 PM, Donna Johansen
> <donnajohansen@telus.net> wrote:
>> Hi Lou...found it!
>> Having to go to Germany is a terrible curse for Canadians....and
> I
>> don't know what to do about it but feel I must...I am in touch
> with a
>> couple of women with one who was in Germany with me and another
> who I
>> contacted prior to going who had a fairly good success there.
>> Is the Haemacure being used in Canada? Guess I should read the
>> link...sorry...just spending so much time reading these emails
> that
>> there isn't much time for anything else. I am sure Mark from
> Seattle
>> would know something about it. He is very good at researching
> the ARD
>> subject.
>>
>> Donna
>>
>> -----Original Message-----
>> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]
> On
>> Behalf Of LOU COOPER
>> Sent: Thursday, March 19, 2009 9:34 AM
>> To: Multiple recipients of list ADHESIONS
>> Subject: Re: Adhesion Barriers Survey
>>
>> .Hi Donna
>> I was asking all that had been to Germany, I was wondering if
> the
>> spray gel worked, I am pleased for you that it was a success, I
> feel
>> that one must have a adhesion barrier after any abd surgery if
> not
>> their is no protection from adhesions.
>> We should not have to go to Germany for this kind of
> surgery,Canada is
>> not in 2009 its in the dark ages, I would like to find out how
> many
>> Canadians are suffering with this, I was told alot and not all
>> women.it would be good if we could fined them.it time that we
> had a
>> adhesion barrier and a good surgeon that understands adhesions.
>> I spoke to a very nice man today works for a company called.
>> HAEMACURE. it has been
>> working on a very good adhesion barrier, its been tryed on 151
> people,
>> with good results, it makes interesting reading
> http://www.haemacure.com The
>> US appears to have a few good surgeons who understand adhesions,
> I
>> wish that I could go to one of them that has been spoken of in
> this
>> forum I thing I am going to do is write a letter to my M.P.any
> port in
>> a storm.
>> Fed up!!!!!!!!
>> Lou
>>
>> On Wed, Mar 18, 2009 at 6:20 PM, Donna Johansen
>> <donnajohansen@telus.net> wrote:
>>> Hi Lou,
>>> I am not sure if you were referring to me (donna j) but I'll
>> reply
>>> anyway. I had surgery last June in Germany. SprayGel was used
>> and
>>> although I have some problems they are nothing like before and
>> I'm not
>>> sure they are adhesion related as I have other issues such as
>> severe
>>> arthritis, back problems, diabetes and who knows what else!
> The
>>
>>> second look one week after my main surgery showed no regrowth
> of
>>
>>> adhesions. I would call it a success as I am alive!
>>> Not sure I would have been without the trip to Germany and Dr.
>> K.
>>>
>>> Donna J
>>>
>>> -----Original Message-----
>>> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]
>> On
>>> Behalf Of Lou
>>> Sent: Tuesday, March 17, 2009 9:07 AM
>>> To: Multiple recipients of list ADHESIONS
>>> Subject: Adhesion Barriers Survey
>>>
>>> Hi All,
>>> It would also be of interest after surgery, did you or did you
>> not
>>> have adhesion barrier.
>>> Donna, you said that you had another sheet of film put in to
>> stop
>>> adhesions, do you know the name of this adhesion barrier and
> the
>>
>>> company. By reading about barriers,it appears that some work
>> better
>>> than others in stopping adhesions returning.This appears to be
>> the
>>> answer, barriers, so like Donna would you mind telling us, your
>> last
>>> surgery, yes or no to having abd barrier also how did it work
>> out.
>>> It would be of great help to all of us to be armed with the
>> facts and
>>> to make an informed decision.
>>> I had surgery in 07 with NO adhesion barrier, thay were back
>> after
>>> 5 days.
>>> JUST INFO
>>> A corp in Montreal and Florida called HAEMACURE hs a fibrin
>> sealand
>>> which has been tested on 151 people that stops adhesions and
>> proved to
>>> be safe.
>>> And maybe was going on the US and Canadian market within the
>> next two
>>> years but just our luck it looks like its up for sale!!!!!
>>> LOU
>>>
>>> --
>>> LOU
>>>
>>> please go to the unsubscribe form at
>>> http://www.adhesions.org/forums/listcmds.htm
>>>
>>> please go
>>> to the unsubscribe form at
>>> http://www.adhesions.org/forums/listcmds.htm
>>>
>>
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