Liz, Please don't feel guilty for expressing your feelings on this site! That's what we're all here for.. Most of us have been through the same thing, and some more than once.. Before you go into surgery again, I would advise getting a surgeon who deals with adhesions on a regular basis.. There are many out there, as you may know if you've read this site before... Unfortunately there are a lot of Docs out there that try to help, but they just make things worse.. From What I can tell, there are Docs in Fla, Ohio, and Pa that I'm aware of.. I flew to Pa, for my last two surgeries, and have not been sorry for one minute.. I had to have two back to back over a six month period and that's been almost three years ago.. My Doc is Dr Gerhart in Pa.(clarkgerhart.com) He's up on the latest barriers etc, and is Great..
Endometriosis is one thing that has a tendency to cause/or make adhesions appear more in some people.(I had it, Hyster for it about 14 years ago after my last child.)
Also I would find a Pain Specialist in the meanwhile, you shouldn't be suffering as much as it sounds like you are.
As far as the Disability, It can be done..but will take time.. Good Luck, and I will be praying for you!! Don't be afraid to email me at anytime if you want to just talk!
Marlene
> Date: Thu, 22 Oct 2009 20:48:50 -0500
> From: tracy.joslin@adhesions.org
> To: adhesions@mail.obgyn.net
> Subject: Just need to whine a bit
>
> Sender: geck0_2@yahoo.com (Liz)
> Subject: Just need to whine a bit
>
> I guess I just need to let a few things out. I am so frustrated and in
> so much pain. I have been dealing with this since I was a kid. It was
> never too much of a problem them, just something I noticed if I stood
> too long. After I got pregnaunt at 15 I noticed it so much more. After
> I had my daughter I finally decided to ask a doctor about it. I tried
> talking to a female thinking she would be more understanding. I was so
> wrong. She told me it was just cramps and to take some advil and get
> over it. I was scared to talk to a doctor again after that. My first
> husband finally conviced me to try again, after lots of test and
> referrals, my OBGYN decided to do a lapo thing I had endometriosis. What
> she found were two cysts on my ovaries and adhesions which she removed.
> I ended up going back because the pain returned. She had to remove my
> uterus then and the adhesions were worse. Of course the pain returned
> this time she went in to do another lapo to remove my ovaries, it was
> supposed to be an in and out surgery. When I woke up I was told that an
> ambulence had to take me to the hospital, both overies were removed, but
> the adhesions were so bad at this point that she couldn't even get to
> them at all. I had to be opened all the way up so she could remove
> them, she also found that they had wrapped around part of my bowels. So
> here I am, again in pain. This is the worst it has ever been and I had
> to stop working. This will be the fourth job I have lost due to this
> problem. My husband and I decided maybe it was time to try for
> disability, which of course has been denied. I am going to the doctor
> for more tests so I can appeal it. My husband is going to push me into
> another surgery and I am terrified. I do not like sugeries, they scare
> me and my past surgeries have all gone wrong. At this point I am
> completly worthless, I can't do much, I am always in pain and have no
> one who understands or that I can really just talk to and cry to. I
> know my family would be so much better off without me. I just don't
> know what to do. I can't sleep, when I try to go to bed with my husband
> I just lay there feeling the pain, I have to be distracted from it, I
> usually just lay down on the couch with the tv on until I pass out
> finally. I am usually up for over 24 hours before I am so exhausted
> that I can finally sleep through the pain for a few hours. Ironically,
> have you noticed that the pain is worse when you are always so tired?! I
> want to cry all the time, but that just makes the pain worse too. I
> hate this. I am only 30 and I feel my life is over. Sorry to whine so
> much, sadly I did try to keep it short, there has been so many other
> things I could share, so many complications from this, so many other
> things going wrong. Thank you for listenting to me
> Liz
>