Sherry, This almost sounds like a Ditto of what I went through.. I had endometriosis really bad and ended up having a hysterectomy etc thus down the road having adhesions . What upsets me the most about your story is all these docs/surgeons that know nothing or don't want to deal with adhesions letting people like you suffer.. There are so many other things that can happen, and the adhesions can cause a lot of damage if they aren't taken care of by someone who knows what their doing.. I went through this same thing having surgeons even telling me that adhesions didn't cause pain.. It's not the adhesions that hurt it's what they can do to all the other organs of your body with all the tuggin pulling, wrapping around ie bowel etc. It sound's like it's time you get to someone who knows what their doing. Their are surgeons who will take care of them and do know what they are doing.. I'm glad you came here.. Their are surgeons in Fla, Ohio, etc, Mine is in Pennsylvania. He saved my life after two other surgeons wouldn't do anything..here. Its Clark Gerhart in Pa..(see clarkgerhart.com) I thank God for him everyday. I know I wouldn't be a live if it weren't for him taking over.. I am so much better than I was, although I know I'll never be quite 100% due to the surgeons here letting me go too long.. I had to take over my self.. and find him. God obviously was in control or I wouldn't be here talking about it...It sounds like you could have a better life, and that you should at least check with him or other Docs that know what their doing..You can contact my Doc through his web site and will ask for your records etc. It won't hurt to try. If you don't mind trooping to Pa.. I haven't regretted it for a second.. The only thing I regret is that I didn't get to him about 8 months sooner.. But like so many people I was stuck in a system that wouldn't do anything. Good luck and let me know how you make out. Marlene
> Date: Wed, 4 Nov 2009 20:58:56 -0600
> From: tracy.joslin@adhesions.org
> To: adhesions@mail.obgyn.net
> Subject: Chronic Pelvic Pain Due To Adhesions
>
> Sender: smwade68@yahoo.com (Sherry)
> Subject: Chronic Pelvic Pain Due To Adhesions
>
> I'm so glad I found this forum. I have had adhesions for almost 20
> years. I have had a hysterectomy in 93 due to endometriosis. I had
> more adhesions removed that same year during an appendectomy. I had
> adhesions removed again in 2004 when I had my gallbladder removed. The
> adhesions that time were in my chest. My surgeon said I also had them
> in my lower abdomen and didn't remove those since they were causing no
> problems at that time. I have had the excruciating pain in my lower abs
> for over 8 months now. I have ct scans, mri, and ultrasounds. They
> showed nothing at all. I keep telling my doctor that it is adhesions.
> She tells me there is nothing to be done and said surgeons won't do
> anything about it either. She put me darvacet for the pain, which she
> said she really didn't want to do since they adhesions can come back.
> After reading about it online I know that there is the right kind of
> help for this. I cannot find any surgeons in Lubbock, Texas that are
> specialists in this. I have become pretty much bedridden. I can't
> work, or go anywhere anymore. I have a 9mo grandson that I can't even
> pick up or play with. My doctor even suggested getting epidurals. I'm
> like, why would anyone want to go through that over and over. Why would
> she want anyone to. On the meds all I can do is sleep. I basically
> cannot function in life anymore. Is there a way to find specialist for
> this, I have looked everywhere online. I would appreciate anyone's
> advice.
>
> Sincerly,
> Sherry
>.