Dear Cheryl,
I know exactly what you are going through as I, myself have been dealing with chronic adhesion pains since my last operation two and a half years ago. Pain doctors are only interested in telling us that we have to learn to cope with our pain with as little medicine as possible, all the while not one of them as ever had to deal with pain of any kind at all. I have tried so many methods, always ready to listen to the doctors and their opinions regarding our pain. Nothing has worked and yet I've had to live with this pain 24/7.
I do have support, however, among my family, my GP and my psychologist. Buddhism and meditation have also played an important part in my coping efforts. Without any of them I seriously believe that I would have ended it all by now. Instead I have made a choice to take charge of my pain and being positive is the biggest step that I have taken.
Don't give up for I believe that we can all get through this and live a life as meaningful as anybody else. We just need to stand up to our so called Pain doctors and make them aware of our true state of pain.
Alice (Western Australia)
> Date: Sat, 27 Feb 2010 21:45:23 -0600
> From: tracy.joslin@adhesions.org
> To: adhesions@mail.obgyn.net
> Subject: 5 weeks of excruciating pain.
>
> Sender: HerbCheryl1@msn.com (Cheryl)
> Subject: 5 weeks of excruciating pain.
>
> After 5 weeks of the worst pain I have ever experienced with adhesions,
> the pain in FINALLY starting to let up a bit. I feel like an emotional
> mess since I had the Celiac PLexus Block. I can't believe I have missed
> over 1 month of my life. This whole experience has really done a number
> on me. I don't want to go anywhere alone. I used to have my Husband
> drop me off at one store while he ran to another. The other day I told
> him I didn't want to be alone could we go to each place together? He
> said no problem. I feel so dependent on him, and I cry a lot. People
> should NEVER have to go through this type of horrible pain and be
> expected to deal with it.
>
> I went to a Comprehensive Pain Clinic yesterday. They hooked up a Tens
> unit and sent me home with it. After about 4 hours I had enough. It
> feels as if it agrivates my pain and intensifies it. They want me to do
> physical therapy, work with a Psychiatrist, and find ways to learn to
> deal with this pain since it will never go away. Evetually they may
> look into a pain pump. Right now I am not thrilled with any of it
> especially any type of exercises, we all know what it does to us. I
> just don't have it in me to even cooperate with them. I'm not trying to
> be stubborn, just emotionally I can't. I am crying while writing this.
> My Husband thinks that exercise would be great for me and is very
> excited about me trying the program the Pain Center is offering. I just
> want to be left alone right now. Does anyone understand me? this?
> Eventually some day when we have money ahead again, I will have adhesion
> surgery again. Thanks for reading this. Only people that deal with ARD
> truely understand what it is to go through our lives this way. Cheryl
>