Re: adhesions surronding the bladder and uv fold
From: bradyjm3551@mccmail.mohave.edu ("bradyjm3551@mccmail.mohave.edu")
Sun Dec 26 19:40:14 2010
Hello. I totally understand. I have not been diagnosed w adhessions on
bladder i think they came after my last adheliyosis surgery. Ill start at
begining. I had a ovarian cyst removed when i was 20. Bad surgery. I didnt
know it at the time. Long story short i had cysts and pain for 7 years. When
my 3rd child was born by csection i was still not told i had adhessions. I
had excrusiating pain for 6 months. Stabbing burning ripping pain. I cannot
explain it better than it feels like stabbing and or ripping inside. I didnt
have insurance so cntinued dealing with pain for another year. Finally pain
was absolutely intolerable. Stomach was swollen i couldnt eat. Doubled over
in pain. Loose stools. Tmi. I lost 20 pounds and im a tiny woman to begin
with. I hate pain pills always have. My mother is addicted to them. (She
also has adhessions on bowels) so i hardly ever took medicines. But i ate
motrin and naproxin like it was candy. Be carefull with that. I ended up
getting ulcers and colitis in bowel from medicines. I went to er. They ran
8000 dollars worth of tests and told me to go home it was a cyst and part of
my large intestine glowed on ct scan. But nothing to worry about. I was
devestated. I literally felt as if i were dying and have 3 children to care
for. Long story short because of that huge er bill i was finally approved
for insurance. I found an amazing ob dr.nelson in lake havasu city arizona.
He was the first dr to believe me about pain n not wanting pain pills. He
did a laprascopy and removed a huge cyst off ovary and diagnosed me with
sever pelvic adhessions. He tried to lazer them off (adheliosis) but couldnt
do much. I waited 3 months pain was still horrible although tiny bit better.
So we went ahead and did a full open surgety where he teamed up with a
surgeon to remove my ovary, tube, and adhessions. I was told i had massive
amount of adhessions. Everywhere. Uterus was stuck to abdominal wall, pelvic
floor, bowels, i lost whole tube and ovary on left side because it was a big
cobweb of adhessions. He tried his best to clear them. And sprayed a
medicine on to repell more growing back. To be honest with you i do not
think it worked. I think that they r back.. But the worst of the pain is
gone.:) i can eat again and have gained weight back. I dont excercise or do
anything hard except carry around baby and clean house all day. Thats a full
time job. I told dr pain is back if i move wrong, cough, or sneeze! But
there is nothing he can do. More surgery leads to more adhessions. And i was
told to not have surgery ever unless i was dying in pain like before because
its risky. I found a good web site with surgery info that said the gas they
blow your stomach up with actually causes more adhessions. It said the ph
balence in your body needs to be constantly monitored by special person. And
orogans need to be moist at all times!!! That air hitting them can and will
cause adhessions. For this reason i chose to never have another surgery
again until the medical sciences find better medicine and surgical teqnices
or i find a specialized dr in adheliosis. I hope some of this info helped
you. We are all stuck waiting and luving in pain. My advice to u after
dealing with this shit for 10 years is to stay strong meantally. Dont be
hard on yourself. If your in pain n need to rest do it. If it hurts u to
wash windows dont do it:) ext... Pray and try to take it day by day. Search
for a great dr and please let me know if u find one out there who knows what
there talking about! Also get an allergy test. I am allergic to milk. My
friend is allergic to all corn products. Something so simple can be
overlooked and misdiagnosed. Good luck to you. And i would like to hear back
from you and how you are doing. Take care of yourself, jen
-----Original Message-----
Date: Thursday, December 16, 2010 9:17:24 pm
To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net>
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org>
Subject: adhesions surronding the bladder and uv fold
From: traceyclark7@msn.com (TLC30X)
Subject: adhesions surronding the bladder and uv fold
hello all..been in chronic pain for 18 months now since my last baby was
born by c section.
all started of with back pain thigh pain then i started to have loose stools
(tmi) the pain started get worse in my tum my badder uretha my legs back
stabbing burning stingin pains every day. so i started the doctor route to
find out what was goin on what a long road thats been i had test after test
x rays sigamosidty blood test smear test pelvic checks etc al clear.at one
point they tried to put me on anti depressents which i refused. then i had
a diagnostic laprascopy which discovered these adhesions around my bladder
and uv fold .
now i have been told i can have a laprascopic adheseoyisis (sp) but could
cause trama to the bladder. im seeing my gyne in a few weeks to discuss
further.
i realy dont want to be in pain any more i take ibroufen every day atm and
it hardy touches it.
has anyone had this operation? and was it sucessfull?
please share your stories and symtoms thankyou.
t x