i just want to say try to hang in there , keep praying to the Lord and trust him . i go to Dr Semerizeds here in cinn. ohio . He has been good for me , as far as understanding my condition. He has not operated on me yet. He is waiting to do a new way of surgery to keep the adhesions form possibly coming back if not slow them down. I has also been taking vitamin b12 with folic acid shots that seem to help lose the adhesions from being so tight and of corse the pain is not as bad. You may want to see if it helps u.I dont take it by mouth, I take by injection . hope i could be of some help. keep praying.
--- On Sat, 5/28/11, IAS Admin <firstname.lastname@example.org> wrote:
From: IAS Admin <email@example.com> Subject: Major Adhesions To: "Multiple recipients of list ADHESIONS" <firstname.lastname@example.org> Date: Saturday, May 28, 2011, 10:48 PM Sender: email@example.com (Roxanne Duhon) Subject: Major Adhesions
I only have 2/3 of my small intestines left and about 1/2 inch of my rectum. My Gastrologist in Houston is wanting me have an ilieoscomy. A better quality of life is what he is trying to accomplish. I have an intestinal muscular disease. My intestines flutter, I do not digest my food, and I am in constant pain. My diet has been strict for over 16 years now. (It is funny how you can still gain weight even though you don't eat much and you try to stretch and walk no matter how painful it is.) I wake up in a fetal position most mornings. I have no feeling in the lower abdomin to know when I need to go to the bathroom. The surgeons are refusing to remove the adhesions before installing the bag. I have so far seen 8 surgeons who have refused to do the surgery after running 3-4 days of testing.
I am not one to have surgery often. My last surgery was in June 2009 and the one before that was in 2002. Three months after my last surgery I was in the same shape before the surgery.
There is a Doctor in New York that I had done research on a few years ago. He came highly recommended for adhesions and he has a high % of successful surgeries without reoccurrances. Does anyone know of him?
If there is anyone else you would like to recommend, please do so.
My outlook on life is that I lived 50 blessed years. I have had 7 wonderful grandkids. They range from 4-14. Two sons who God blessed me with. A husband who spends too much time worrying about me and loves me very much. The rest of my immediate family and friends is large and very loving. I spend my time doing what I can for any of them (usually with them opposing).
I believe in making the most of each day and doing what ever I'm capable of doing on that day. We never know what tommorrow brings. Most of my extended family and friends are not aware of my problems or at least not how bad they are.
Each day I pray for the sick, elderly and the children of this world. There are far too many people worse off than I am; therefore, my family and others come before me.
I would appreciate any insight or references anyone may have. Thank you and may God watch over you and yours.