On Dec 29, 2011, at 1:01 AM, "IAS Admin" <tracy.joslin@adhesions.org> wrote:
> Sender: jetstamp@yahoo.com (AIRPLANE)
> Subject: Re: Constant back pain, bowel issues
>
> and I get the distinct feeling that my
>> gynecologist doesn't want to do anything with this... perhaps he's
>> inexperienced in taking down adhesions. All I know is I'm miserable day
>> in and day out. Any comments?
>
> I'm in the same boat. I don't have the back pain (not yet anyway) but
> I've had what I'm sure are adhesion-rekated issues for close to 28 years
> now. I only got one 2-week respite back in 1991 when I had an
> exploratory lap for pelvic pain. I was told that nothing was found-
> they just recommended hysterectomy due to fibroids but I knew that
> wasn't the answer so I said no thanks. Interestingly, I esperienced a
> strong loosening effect- in fact, one night while laying in bed I felt
> something in my abdomen snap and it literally shrunk in half. I felt
> fabulous for 2 weeks but then I felt the tightening return and all of my
> pelvic pain and so-called IBS symptoms with it. Doctors said they did
> nothing to cause this improvement but they must have done some cutting
> of adhesions while they were in there but didn't think it was worth
> mentioning or didn't want to. Who knows. So anyway, it's like I had
> adhesiolysis without knowing it.
>
> And I didn't know about adhesions until maybe 10 years ago. I have been
> told by physical therapists and my medically-oriented massage therapist
> that I have some pretty bad restrictions due to adhesions. My sigmoid
> area is really bad. I eventually gave in to hysterctomy 13 years ago
> and my left pelvic area has been really bad ever since. I have inflamed
> nerves, sciatica, vulvodynia, sometimes a sense of a fistula. Still
> have the so-called IBS. Yet gynecologists will not do anything but a
> pelvic exam no matter what I say. I tell them what the physicalo
> therapists said and it falls on deaf ears.
>
> Having to go to a full-time job with this pain and some of the
> humiliating symptoms-from the heat of the vulvodynia and the leakage of
> an apparent fistula- i.e., I stink and people insult me right behind my
> back about it- that go with it it insane. And besides all these things,
> the hysterectomy made what adhesions I already had worse. My abdominal
> wall and pelvic floor feel like sandpaper. The gynecologist that did
> the surgery dropped me like a hot potato- did not want to speak to me at
> post-op visits.
>
> I sometimes think about going to an attorney to see if they could get
> somebody to help. But then doctors would probably want nothing to do
> with me. Still, it feels like medical negligence when you are refused
> proper help for your problems.
>