Re: the end of the line.

From: Donna Toupin (
Sat May 5 09:57:35 2012

Hi, Your story struck a chord w/ me- I haven't posted here in years although I have been a longtime ARD (adhesions related disorder) sufferer - 28years and

unfortunately 16 surgeries worth.

But the reason that I wanted to write was because of your story. Have you been checked for Celiac or Spruce disease? This is the inability to digest gluten, which will cause constant diarrhea and the stomach/pelvic pain you are having. Talk to anyone who is dealing with the disease and they will tell you what a challenge they went through to get diagnosed and how much pain too they went through -much like you described. I witnessed it first hand with a family member that's why I wonder of you have another avenue to pursue ? You would have to cut out all wheat, rye barley, and fructose (there may be others-please check with the experts) and in the meantime while you are experiencing so much diarrhea you should consider replacing lost electrolytes (gatorade for example) and lots of water, otherwise you do get very quickly dehydrated which can ALSO cause further pain. It is a horrible cycle.

I wish you the best.


Sent from my iPhone

On Apr 24, 2012, at 9:47 PM, "IAS Admin" <> wrote:

> From: [] On Behalf
Of > kelly murray
> Sent: Saturday, April 14, 2012 4:06 PM
> To:
> Subject: RE: the end of the line.
> Maybe you could get referred to Pain Management. Low residue diet helps
but > I know that's hard to follow. Sounds like adhesions. They usually don't
> show up on scan's etc...
> Hopefully you can get some relief.
> Kelly
>> Date: Sat, 14 Apr 2012 11:39:17 -0500
>> From:
>> To:
>> Subject: the end of the line.
>> Sender: (john)
>> Subject: the end of the line.
>> hi all im only new here so here's my story for the last 12 years I have
> been
>> extreme pain with my abdominal pain constant diarrhea and urine problems
I >> have had every test under the sun which has shown nothing not one day has
>> past that I have been pain free its 24/7 for twelve years no tables help
I >> did have a laparoscope a few years back which they found adhesions and
> they
>> took my appendix out they took some adhesions out but im not sure how
much >> anyway nothing has changed and I don't attend the hospital any more but
> they
>> never motioned adhesions they basic said no its not that you will just
> have
>> to learn to live with the problem recently the pain has gotting worse and
> is
>> all over my abdominal now and don't know what to do cause they wont
listen >> to me because ive had all the scans im in a corner now and dont think I
> will
>> pull though if it continues for much longer because my body feels so weak
>> and wants to give i can only go out a few days a week now because of the
>> diarrhea i cant eat for a couple of days before i have to go somewhere
>> because i will double up on the street with pain and diarrhea which is
> very
>> embarrasing as you imagine the pain just wont stop what should i do.

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