Re: Pelvic adhesions and exercise

From: Jes (JesAvery@cox.net)
Fri Jul 13 17:09:30 2012


OMG, I cried when I read your stories here on this site! I am not alone!!! I had my first surgery to remove adhesions from my C section in August of 2010. I got pregnant after that and had another C section. This past May, I had surgery to remove adhesions again after the pain was so bad I was in the ER. Some of the pain in coming back and I am making arrangements to have my tubes tied and adhesions removed for the third time. It it extremely difficult to do anything some days. I get pain all the way into my leg so that I can barely stand or walk. Before i had my surgery in 2010, I was put on intermittent medical leave from work because I had to miss so much work sue to the pain I was in. I am just so happy that I am not alone!! I have felt like I am alone because no one can see my pain or knows what its like. I have felt like I'm the bad guy, making it up to get out of whatever I have going on. I AM NOT! I want to hug each and everyone of you!!

At Fri, 8 Jun 2012, IAS Admin wrote: >
>________________________________________
>Jennifer Brady
>________________________________________
>Sent: Thursday, June 07, 2012 11:31 PM
>To: adhesions-request@adhesions.org
>Subject: Re: Pelvic adhesions and exercise
>
>Hi, I just read your messages and both of your stories sound extremely
>similar to my own.
> I am 29 and I have had ovarian cysts for twelve years and adhesions for
11. >I cannot excersise
>it make the pain worse. I have had four surgeries and three children. So
>normal cleaning and life
>is too much to handle, I try to rest as much as possible, I would encourage
>you to also. This is
>an extremely difficult diagnosis, especially when there is no treatment
>available. Try not to have
>surgery again unless you are literally dying. That's my plan. I was
>depressed a few years ago, i know
>how you are feeling, maybe not exactly but I understand how hard it is to
>feel like your 90 in your
>twenties  Stay strong, take it easy as much as possible, rest, pray,
sleep!! >take vitamins and
>try and stay hopeful. I began to do alot of resurch a few years ago. look
at >fda website for clinical trials
>related to adhesions. They suggested cranberry supplements. I've been
taking >them. I want to try
>spratese and other enzymes but I cannot affrod them right now. Anyway, I
>went back to school to
>become a neo-natal nurse someday, and along the way I am trying to better
>understand this disease.
>Does anyone else in your families have adhesions? cysts? tumors? I feel
>there is a genetic link. My 
>mom had severe abdominal adhesions and had a bowl obstruction. She is
>addicted to pain medication,
>not just taking it, she abuses it. I hope you all watch out for that. It is
>easy to become addicted, I try not
>to ever take it unless I want to go to the hospital then I will take at
>night to sleep. I have to try and live
>a normal life. I believe finding more purpose in life helped me get out of
>the slump I was in. I feel like
>I am doing something about this. Everyone says there is nothing we can do,
>but that is not true. knowledge 
>is power. Try to find out as much as you can, and follow your own
instincts. >listen toyour body and
>rest and eat. Do you all have problems gaining and keeping on weight??? I
>do. I'm too skinny all the time.
>I hope you are doing better today. Good luck. Please let me know if
you find >new information.

>

>On Wed, May 30, 2012 at 7:03 PM, IAS Admin <tracy.joslin@adhesions.org>
>wrote:
>Sender: sophiesisthebest@hotmail.con (Sophie)
>Subject: Re: Pelvic adhesions and exercise
>
>Hi Laura, I am also 21 and have adhesions in my pelvic area.  It started
>this time last year in may when I had an ectopic pregnancy, I was
>treated with methotrexate which was he worst pain of my life...but I
>manged to get through it! 6 months later I had a laparoscopy because I
>was suffering from bad pains...that is when they found extensive
>adhesions.  I had them removed ur I am now in the same pain...I cannot
>walk sometimes...I am in pain 24 7.  It is awful...all I wana do is cry.
>I used to be such a bubbly happy person, I'm just a shell of what I used
>to be.  Funnily enough I've just got back from the doctors and he gave
>me pain meds and anti depressants because I told him how sad this was
>making me.  I cannot see a way out anymore, I've tried
>everything...exercise...stretching...hot baths...massages...diet swaps!
>Nothing has improved.  I'm at my wits end
>
>Hope things get better for the both of us :) x
>
>t Sat, 12 May 2012, Laura wrote:
>>
>>Hi,
>>
>>Ok so my story.  Im 21yrs old.  When i was 17 had 10cm in diameter
>>Ovarian Dermoid tumour.  Only on left ovary, they removed it after about
>>3 months of it being undiagnosed.  They did open c-section surgery.  Then
>>few months later still no better.  I turned 18 and there was another 8cm
>>in diameter tumour on the same ovary as before.  Doctor went in key hole
>>to remove it and said it was attached to my sigmoid colon by adhesions.
>>I was having TERRIBLE bowel problems.  Anyway..  few months later still
>>no better.  Had to go out of the country so a doctor would have a look
>>because the all just told me there was nothing wrong with me, and i knew
>>myself i was not right still.  Had more keyhole surgery and i had LOADS
>>of adhesions all around where the tumors were before.  I even had some
>>to my liver prior to a pelvic infection apparently.  So the surgeon cut
>>through them and used something called ADEPT to try and stop them coming
>>back.  And guess what? still no better..  thisn have settled down a bit,
>>i deffinately still have some adhesions there.  What I am asking is does
>>anyone have a similar story but their pain gets worse when the exercise?
>>Obviously something is stuck to something in there and when i exercise I
>>get really really bad pains..  It feels like a mixture between a stitch
>>and a massive bruise, but the pain will linger for days after i have
>>used the threadmill or something like that.  And also does anyone think
>>there is even any point in going back to the doctors for them to have
>>another look..  because if the Adept stuff didnt work the first time
>>what else can they do to stop them coming back? Also have just been
>>diagnosed with depression just purely due to the chronic pain.  Its
>>terrible..you would think there must be something to stop them coming
>>back!
>>Thanks!
>
>--
>Sophie xxx
>


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