Hugs right back to you. It's just too bad that there aren't any Dr's that can feel our pain, They always tell me adhesions don't cause pain. I tell them to try living in my body for a while then tell me that. I'm at the point where Dr's are just idiots. They always want to blame the pain on the depression and they just don't get it's the pain causing the depression. take care! Wendy In a message dated 7/13/2012 5:10:37 P.M. Central Daylight Time, tracy.joslin@adhesions.org writes: Sender: JesAvery@cox.net (Jes) Subject: Re: Pelvic adhesions and exercise
OMG, I cried when I read your stories here on this site! I am not alone!!! I had my first surgery to remove adhesions from my C section in August of 2010. I got pregnant after that and had another C section. This past May, I had surgery to remove adhesions again after the pain was so bad I was in the ER. Some of the pain in coming back and I am making arrangements to have my tubes tied and adhesions removed for the third time. It it extremely difficult to do anything some days. I get pain all the way into my leg so that I can barely stand or walk. Before i had my surgery in 2010, I was put on intermittent medical leave from work because I had to miss so much work sue to the pain I was in. I am just so happy that I am not alone!! I have felt like I am alone because no one can see my pain or knows what its like. I have felt like I'm the bad guy, making it up to get out of whatever I have going on. I AM NOT! I want to hug each and everyone of you!!
At Fri, 8 Jun 2012, IAS Admin wrote:
>
>________________________________________
>Jennifer Brady
>________________________________________
>Sent: Thursday, June 07, 2012 11:31 PM
>To: adhesions-request@adhesions.org
>Subject: Re: Pelvic adhesions and exercise
>
>Hi, I just read your messages and both of your stories sound extremely
>similar to my own.
> I am 29 and I have had ovarian cysts for twelve years and adhesions for
11.
>I cannot excersise
>it make the pain worse. I have had four surgeries and three children. So
>normal cleaning and life
>is too much to handle, I try to rest as much as possible, I would encourage
>you to also. This is
>an extremely difficult diagnosis, especially when there is no treatment
>available. Try not to have
>surgery again unless you are literally dying. That's my plan. I was
>depressed a few years ago, i know
>how you are feeling, maybe not exactly but I understand how hard it is to
>feel like your 90 in your
>twenties Stay strong, take it easy as much as possible, rest, pray,
sleep!!
>take vitamins and
>try and stay hopeful. I began to do alot of resurch a few years ago. look
at
>fda website for clinical trials
>related to adhesions. They suggested cranberry supplements. I've been
taking
>them. I want to try
>spratese and other enzymes but I cannot affrod them right now. Anyway, I
>went back to school to
>become a neo-natal nurse someday, and along the way I am trying to better
>understand this disease.
>Does anyone else in your families have adhesions? cysts? tumors? I feel
>there is a genetic link. My
>mom had severe abdominal adhesions and had a bowl obstruction. She is
>addicted to pain medication,
>not just taking it, she abuses it. I hope you all watch out for that. It is
>easy to become addicted, I try not
>to ever take it unless I want to go to the hospital then I will take at
>night to sleep. I have to try and live
>a normal life. I believe finding more purpose in life helped me get out of
>the slump I was in. I feel like
>I am doing something about this. Everyone says there is nothing we can do,
>but that is not true. knowledge
>is power. Try to find out as much as you can, and follow your own
instincts.
>listen toyour body and
>rest and eat. Do you all have problems gaining and keeping on weight??? I
>do. I'm too skinny all the time.
>I hope you are doing better today. Good luck. Please let me know if
you find
>new information.
>
>
>
>On Wed, May 30, 2012 at 7:03 PM, IAS Admin <tracy.joslin@adhesions.org>
>wrote:
>Sender: sophiesisthebest@hotmail.con (Sophie)
>Subject: Re: Pelvic adhesions and exercise
>
>Hi Laura, I am also 21 and have adhesions in my pelvic area. It started
>this time last year in may when I had an ectopic pregnancy, I was
>treated with methotrexate which was he worst pain of my life...but I
>manged to get through it! 6 months later I had a laparoscopy because I
>was suffering from bad pains...that is when they found extensive
>adhesions. I had them removed ur I am now in the same pain...I cannot
>walk sometimes...I am in pain 24 7. It is awful...all I wana do is cry.
>I used to be such a bubbly happy person, I'm just a shell of what I used
>to be. Funnily enough I've just got back from the doctors and he gave
>me pain meds and anti depressants because I told him how sad this was
>making me. I cannot see a way out anymore, I've tried
>everything...exercise...stretching...hot baths...massages...diet swaps!
>Nothing has improved. I'm at my wits end
>
>Hope things get better for the both of us :) x
>
>t Sat, 12 May 2012, Laura wrote:
>>
>>Hi,
>>
>>Ok so my story. Im 21yrs old. When i was 17 had 10cm in diameter
>>Ovarian Dermoid tumour. Only on left ovary, they removed it after about
>>3 months of it being undiagnosed. They did open c-section surgery. Then
>>few months later still no better. I turned 18 and there was another 8cm
>>in diameter tumour on the same ovary as before. Doctor went in key hole
>>to remove it and said it was attached to my sigmoid colon by adhesions.
>>I was having TERRIBLE bowel problems. Anyway.. few months later still
>>no better. Had to go out of the country so a doctor would have a look
>>because the all just told me there was nothing wrong with me, and i knew
>>myself i was not right still. Had more keyhole surgery and i had LOADS
>>of adhesions all around where the tumors were before. I even had some
>>to my liver prior to a pelvic infection apparently. So the surgeon cut
>>through them and used something called ADEPT to try and stop them coming
>>back. And guess what? still no better.. thisn have settled down a bit,
>>i deffinately still have some adhesions there. What I am asking is does
>>anyone have a similar story but their pain gets worse when the exercise?
>>Obviously something is stuck to something in there and when i exercise I
>>get really really bad pains.. It feels like a mixture between a stitch
>>and a massive bruise, but the pain will linger for days after i have
>>used the threadmill or something like that. And also does anyone think
>>there is even any point in going back to the doctors for them to have
>>another look.. because if the Adept stuff didnt work the first time
>>what else can they do to stop them coming back? Also have just been
>>diagnosed with depression just purely due to the chronic pain. Its
>>terrible..you would think there must be something to stop them coming
>>back!
>>Thanks!
>
>--
>Sophie xxx