Re: sponse Re: CT & Barrium

From: Toni Welsh (welsh@mail.fuse.net)
Mon Apr 19 07:46:51 1999


At Sun, 18 Apr 1999, CYNDY HAMILTON wrote: >
>Dear Chris:
>My name is Cyndy...I have been an adhesion suffer for 10 years...I am
>39 years old and have had 21 abdominal surguries for.....many problems
>not even related to the adhesions....but for the last 10 years I have
>been looking for an answer to this problem....I am now seeing a doctor
>at UCLA in california...he just treats the problem with pain meds...I
>have a 18 year old and a 14 year kids....they have been going through
>this along with my husband and they just want their mom to be PAIN
>FREE..I am very ashamed to say last week my 18 year old son got me a
>wheel chair and we took my 14 daughter to Universal Studios for the
>first time in her life...she has never gone to Disney land or any
>amusement park....I am just not able to go do things because I am in
>Pain all the time....
>My husband and I have done alot of homework...on this subject...We found
>a doctor who is doing alot of work with Barriers....and adhesions...I am
>alittle afraid....of that because I am not sure of the long term
>benifits versus the quality of life I have now...I am on Disabilty from
>work....and very

Hi Cindy,

I know how you feel too, I have had a few drs here that have told me I may have to learn to live with it, I am now frustrated to the fact my bowels do not move without taking a vegetable laxative. The drs told me to take it b/c it is IMPORTANT to keep them moving. Now they say it has caused lazy bowel, and I do not go without it, last night I was busy all weekend so I did not take it, and had severe pain last night, so I took the senekot, and got up today to a glass of prune juice, usuallt that will clean me out!

I have some decent times now that the pain center has put me on another drug, I take trazadone to sleep, also used for chronic pain, darvocet, which does NOTHING for the pain, and the neurotin, which seems to give me more quality time to do the things I need to do at home, so I am alittle happier.

I keep telling my husand no one understands the pain we get from adhesions, and I wish this forum would make it, because I know you all understand!

Toni >I have been reading all the postings people are writing and decided to
>write myself....I am so glad that there are others out there like myself
>I am so,so tired of Doctors saying, "YOU MIGHT HAVE TO JUST LIVE WITH
>THIS...." I wonder if they (the doctors) have to LIVE every day like we
>do with severe pain...If the doctors would like to "JUST LEARN TO LIVE
>WITH IT..."
>Well I for one am very glad this forum is here and my husband truely
>enjoyed the one letter from the spouse.....
>
>KEEP ON "HANGING IN THERE" thanks Cyndy


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