At Wed, 21 Apr 1999, CYNDY HAMILTON wrote:
> >Toni Welsh wrote: >> >> This is the most frustrating thing I have ever had to go through in my >> life, and I am so sick and tired of all the drs including the pain >> center has told me I may have to live with it! I feel the same about >> surgery(laparotomy), I will never go through that again(Ihope), but as >> far as a lap, I would hope the drs could get in to maybe remove SOME of >> these adhesions. >> >> The last laparotomy was very hard on me, I was in terrible pain, and >> develped an ileus, and was sick for 2 days until it resolved, I was >> miserable, and was in the hospital a week, the surgery in april was not >> that bad and I was only there 3 days, the gyn said that each time they >> manipulate the bowel, it slows it down more everytime, and more >> complications can arise, that is why they are trying to stay away from >> ANY surgery for quite some time. He told my husband he would be willing >> to do a lap but he will not touch the abdomen for awhile, so I have to >> be patient and he talked too about the new barriers that may be >> available by the end of the year. I do get some relief from the pain >> center, but the pulling and pain in the lower abdomen, and legs and >> groin area, I am not pain free, I would give anything to be painfree, >> and I wish the drs would quit telling me i have to learn to live with >> this, maybe they mean for alittle while, all I know is they say more >> surgery could make matters worde, and I know my gyn is fed up with me >> complaining, but he was the only one who seemed to understand til the >> pain center, I am sorry this is so long, just had some time I thought I >> would write my frustrations, thinking it may help me feel better, I hate >> to keep telling my husband, I am sure he gets tired of hearing about it, >> but I am gettng tired of living it! >> >> Hope you are all doing okay, and if you need to talk you can email me, >> my computer is very slow, but I will try to answer if I can help anyone! >> >> Toni > >Hi Toni... >My name is Cyndy...I am a 39 year old adhesion suffer....my husband >and I are at a frustration level....I have had many,many surguries >and the adhesions are so bad that the drs. tried the lap..scope and >they could not penatrate through the adhesions....so they sent me home >and here i sit 4 years later and many doctors later....they all start >out the same....you know the routine...they want to help....then they >give you pain meds....then they want you to try and not take the pain >meds.....then you SUFFER and then they (the doctors) get tired of you >and the cycle begins all over again... >So in addition to being in PAIN you have to play games with the >doctors...... I am so,so tired of all of this > THERE HAS TO BE SOMETHING OUT THERE FOR ALL OF >US.... SOMETHING ON THE CUTTING EDGE...THAT CAN HELP..... > >THANKS CYNDY