I do not want to be a cash 'cow' for some doctor to help me MANAGE my CONDITION. I want a CURE, with a higher that 30% success rate.
Unless I suffer a bowel obstruction, I am going to 'hang in there' for the meantime and read and watch, and listen. I know the DEVIL I've got, but I can only imagine the DEVIL I could wind up with.
I know how hard it is to get and keep moving. When you are in pain, the tendancy is to curl up and pray for relief. However, if you ccan just get yourself past that, and get yourself moving and stretching, it helps the intestines to straighten out a bit, and helps you to keep your bowels moving. Also...lots of water! For those of you suffering from bladder infections...try CRANBERRY juice or the herbal capsuls. It has helped me a lot! Also, I noticed that some of the aching in my hips might be just getting older. I have started taking glucosamine and calcium w/ vitamin D and magnesium, and I have noticed a dramatic lessening of the pain in my hips, as well as my shoulders--an added BONUS! Also, if you take the calcium, I think it is best to take it in the a.m. A friend of mine has had two kidney stone flare ups in the past three months. They have found a lot of calcium in her morning urine. They said it is bad to have a lot of calcium in the evenings as it sits in your bladder all night and can cause stones. The doctors recommended that she drink lots of water (2 liters in the evening BEFORE BED). Of course she'll probably never sleep all night through again, but it sure beats the pain of kidney stones.
Here's an idea...what about writing a letter to the A.M.A. and/or the National Institute of Health, requesting that they take this condition seriously, and spend a little of the taxpayers $$$ researching it. The squeeky wheel gets the grease, right?!
I better cut this off before they take away my soap box!
Know that I am a kindred spirit. If I hear of anything, I'll be right in there passing it along.
All the best to all the rest with a prayer to wrap it in.
KHG
Toni Welsh wrote:
>
> At Tue, 27 Apr 1999, C.M wrote:
> >
> >Hello, I just found the site and did not even realized it was up yet,
> >but I am glad it is.
> >I am 26 years old I have had 2 abdominal surgeries and now I suffer from
> >adhesions. I have bowel problems, alot of pulling and live in pain
> >everyday.
> >As I write this I have the hardest choice to make, I live in pain
> >everyday, the doctor said I could have another surgery, but he can not
> >tell me anything, only that they will try to do a lap, but if the
> >adhesions are anything like they were the last time I might have to be
> >cut back open, and I might lose my remaining ovary too. I know that the
> >more surgery the more adhesions but there is also hope that maybe it
> >would make things better.I have read others posts about having more
> >surgery after finding out you had adhesions and was wondering how you
> >were able to make the choice to have another surgery, I know this sounds
> >stupid but it would help me greatly, I talk to my husband but it does
> >not understand why the choice is so hard to make. Thanks for listening.
> >
> >--
> >C.M
> >
>
> Hi! I too am so happy this forim is running, but not alot of people are
> here! I thought there was alot of women waiting for this. I too am
> being pushed out by my gyn, he has sent me to pain center which has put
> me on Neurotin, trazadone, and darvocet, still not out of pain, I hope
> the next time they will find something else to help, I thought for
> awhile things were getting better, but I still live daily with the
> pulling pain all across the lower pelvis, and getting up and down is a
> real chore, but I am trying to do as they all tell me, I am trying to
> live with it!
>
> I had the 2nd laparotomy in sept last year, and the pain has gotten
> worse, so the drs all tell me I have to stay away from any surgery, but
> as the time goes by, I feel like I cannot live like this no more! I have
> stopped taking premarin, to see if there is any estrogen produced in my
> body in a few weeks, one dr mentioned ovarian remnent, but the gyn I see
> does not think so, he said he would have saw it at the second surgery,
> but the one dr said it could have been a small piece of tissue that was
> so stuck, it could regenerate another ovary. I have had NO memeopauseal
> symptoms, so I do not know if that could be. It is VERY painful in ONE
> spot on the right side, and that was the oavary he removed last year.
> But the gyn says there is no more he can do , unless a new barrier would
> come out, but he told my husband he will not go back in there for
> awhile, he is afraid the scope would not get in again, so I am waiting!
>
> I hope to hear from some more women looking forward to seeing how they
> deal with these problems!
>
> Toni
-- godfrey@doubled.com