Re: Frustrated
From: Christine M. Smith (smithy@maine.rr.com)
Tue May 11 20:06:56 1999
At Tue, 11 May 1999, Michele wrote:
>
>Hi-
>I'm TAH BSO in 1994 after it was thought total hysterectomy was a cure
>for severe endometriosis. In 1997, I found out I did not have "phantom
>pain". I had ORS, Ovarian Remnant Syndrome. The first surgeon
>failed...the second surgeon (an endo only specialist) succeeded. But, I
>was always an adhesion grower and they've returned.
>
>It's believe one is on the bowel.
>
>I had endo post-hyst, ORS and adhesions. I know the ORS is gone, and I
>have symptoms of adhesions, not endo this year.
>
>..and a partridge in a pear tree.
>
>I'm trying to remain positive. Hard to do today, but perhaps I'll have
>a better attitude tomorrow. OUCH.
Hi!
What does Ovarian Remnant Syndrome do besides stir up endometriosis?
(because the remaining piece of ovary continues to make estrogen I
guess?) I was treated with Lupron 10 years post-hysterectomy (ovaries
left in) which is kind of unusual I guess. I had been seeing a
neurologist for 4 years, taking a low dose antidepressant for chronic
leg pain, (had gone to the neurologist to rule out nerve disease) when
my gyn casually mentioned that endo causes leg pain. 3 months into the
Lupron treatment the leg pain was gone.
Chris S.