Re: Adhesions - What else?B.J.

From: peggy sue (ylpeggysue@aol.com)
Thu May 13 19:07:06 1999


At Mon, 3 May 1999, Toni Welsh wrote: >
>At Sun, 2 May 1999, B.J. Marra wrote:
>>
>>I've had 8 pelvic surgeries. You know, the usual GYN crap. But it
>>wasn't until the last 2 that I really started having problems. Now I'm
>>like all of you and I hate it. My quality of life stinks. I try so
>>hard to do all the things I enjoy: running, biking, hiking, working out.
>>I'll have a run of good days and think maybe it's going to be ok. Only
>>to be slapped in the face by a reality check. I try to keep my spirits
>>up, but it's hard isn't it? The company I worked for for yrs just left
>>the area and they were real flexible with me and my health issues. Now
>>I have the dilema of trying to find new employment and asking myself can
>>I honestly give them my best? How long will it be before the pain gets
>>the best of me again? It's such a vicious cycle. Has anyone out there
>>had any luck at all with surgery to remove the adhesions? So far all
>>I've read are negative results. I'm currently trying magnetics: I wear
>>one around my waist and sleep on a bed pad with 350 of them in it. Who
>>knows if its working. Anyone else tried magnets? I'm off Lortab which I
>>took on and off for the last 2 yrs. Boy was that fun (the withdrawals)!
>>And you guys are right-most doctors just don't want to deal with you. I
>>was in the ER last Friday and they did absolutley nothing for me. I was
>>in so much pain that I even took my overnight bag, practically hoping
>>they'd admit me and do some extensive tests. Fat chance! I didn't even
>>get a shot for the pain. I guess I'll try a pain clinic. But would
>>really like to hear from someone with positive results from surgical
>>removal of the adhesions.
>>
>>--
>>B.J.
>>
>Hi, I am Toni, i am also a suffeerer with adhesions, which I believe has
>taken over my life, and NO dr wants to fool with us. My gyn did 2
>laparotomies and 2 laps in 6 months, and he said the last laparotomy had
>to be done just for the fact that transverse colon was stuck to the
>pelvic floor and was smothering the small bowel, he also said he lysed
>extensive adhesions from loops of small bowel. I am now going to pain
>clinic, and the meds are not helping yet, I am on Neorotin, trazadone
>and I taking darvocet, which does NOTHING for the pulling pain, and the
>usual pain I have all the time aND THat is always in the groin area, one
>girl said it right, like and old doll with the rubber bands pulled too
>tight.
>
>I am going to see gyn soon, to look at the pictures, and I want him
>explain them ALL, and maybe I will understand the pain I am having, but
>I have NO relation with husband, it hurts too much, now I have to worry
>about that, I cannot take much more, they say IF a barrier comes out
>that can be used laparoscopically, he may consider surgery maybe in 6
>months, they ALL say to stay away from surgery, and learn to live with
>it, but I am crying daily again you can only take so much! Toni
Hi, I am Peggy and I too suffer from adhesions. I know that I should feel better that I am not alone in my pain, But honestly it is quite discouraging. I have had 8 surgeries, 4 in the past 4 years to remove adhesions and anything else they could take, uterus, overies, apendix etc. I have been searhing for info. on new products and research currently under way and have not been able to find anything so far, except for Adcon-p.I know that more surgery causes more adhesions, but without surgery I can not walk, and things are at that point again. I don't cry all the time now thanks to the anti depressents. My Dr. used Interceed Gel the last time, it lasted 5 months. I understand the pulling feeling, my intestines get attached to everything else and then I can not move. My husband says just stretch, Ha Ha. Looking forward to some good news.

--
Peggy

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