At Mon, 3 May 1999, Toni Welsh wrote:
> >At Sun, 2 May 1999, B.J. Marra wrote: >> >>I've had 8 pelvic surgeries. You know, the usual GYN crap. But it >>wasn't until the last 2 that I really started having problems. Now I'm >>like all of you and I hate it. My quality of life stinks. I try so >>hard to do all the things I enjoy: running, biking, hiking, working out. >>I'll have a run of good days and think maybe it's going to be ok. Only >>to be slapped in the face by a reality check. I try to keep my spirits >>up, but it's hard isn't it? The company I worked for for yrs just left >>the area and they were real flexible with me and my health issues. Now >>I have the dilema of trying to find new employment and asking myself can >>I honestly give them my best? How long will it be before the pain gets >>the best of me again? It's such a vicious cycle. Has anyone out there >>had any luck at all with surgery to remove the adhesions? So far all >>I've read are negative results. I'm currently trying magnetics: I wear >>one around my waist and sleep on a bed pad with 350 of them in it. Who >>knows if its working. Anyone else tried magnets? I'm off Lortab which I >>took on and off for the last 2 yrs. Boy was that fun (the withdrawals)! >>And you guys are right-most doctors just don't want to deal with you. I >>was in the ER last Friday and they did absolutley nothing for me. I was >>in so much pain that I even took my overnight bag, practically hoping >>they'd admit me and do some extensive tests. Fat chance! I didn't even >>get a shot for the pain. I guess I'll try a pain clinic. But would >>really like to hear from someone with positive results from surgical >>removal of the adhesions. >> >>-- >>B.J. >> >Hi, I am Toni, i am also a suffeerer with adhesions, which I believe has >taken over my life, and NO dr wants to fool with us. My gyn did 2 >laparotomies and 2 laps in 6 months, and he said the last laparotomy had >to be done just for the fact that transverse colon was stuck to the >pelvic floor and was smothering the small bowel, he also said he lysed >extensive adhesions from loops of small bowel. I am now going to pain >clinic, and the meds are not helping yet, I am on Neorotin, trazadone >and I taking darvocet, which does NOTHING for the pulling pain, and the >usual pain I have all the time aND THat is always in the groin area, one >girl said it right, like and old doll with the rubber bands pulled too >tight. > >I am going to see gyn soon, to look at the pictures, and I want him >explain them ALL, and maybe I will understand the pain I am having, but >I have NO relation with husband, it hurts too much, now I have to worry >about that, I cannot take much more, they say IF a barrier comes out >that can be used laparoscopically, he may consider surgery maybe in 6 >months, they ALL say to stay away from surgery, and learn to live with >it, but I am crying daily again you can only take so much! Toni
Hi, I am Peggy and I too suffer from adhesions. I know that I should
feel better that I am not alone in my pain, But honestly it is quite
discouraging. I have had 8 surgeries, 4 in the past 4 years to remove
adhesions and anything else they could take, uterus, overies, apendix
etc.
I have been searhing for info. on new products and research currently
under way and have not been able to find anything so far, except for
Adcon-p.I know that more surgery causes more adhesions, but without
surgery I can not walk, and things are at that point again. I don't cry
all the time now thanks to the anti depressents.
My Dr. used Interceed Gel the last time, it lasted 5 months.
I understand the pulling feeling, my intestines get attached to
everything else and then I can not move. My husband says just stretch,
Ha Ha.
Looking forward to some good news.