Re: colo-rectal surgeon cont'd-Toni

From: Christine M. Smith (smithy@maine.rr.com)
Sat May 22 22:53:33 1999


At Sat, 22 May 1999, toni welsh wrote: >
>At Thu, 20 May 1999, Christine M. Smith wrote:
>>
>>Just wanted to add that he confirmed what I suspected-that there could
>>have been something about the surgery, unrelated to the actual
>>procedure, that relieved the pain. Surgery affects the body in many
>>ways and anesthesia is known to affect the immune system. Also, your
>>body increases production of steroids after an injury, which surgery is.
>>He thought my gi symptoms are related to the sudden increase in fiber. I
>>may have had a partial bowel obstruction (from the adhesion)that started
>>this whole thing off 2 years ago but since I have different types of
>>pain its possible I have different problems. Without the possible bone
>>pain, the adhesion pain may be much more tolerable. We'll see where
>>this leads.
>>
>>Chris S.
>hello chris,
>
>I hope you will still talk to me, I do worry about you, and care about
>you. I am confused of what he is going to do for you, I am seeig pcp
>june 8th, and I want to ask him about seeing one.
>
>Right now things re going so bad with the bowels moving, I spend most of
>my day trying to mve them, if I dont it hurts really bad, now that
>laxatives do NOTHING<and the day before I tried to go before I drank
>tons of prune juice, and it was pencil thin, one stool, and iti hurt bad
>to getthat out. I am struggling terrible, and if I do not take alot of
>the juice to go , I have to keep the bowels like water, the only way I
>getrelief anymore, and my abdomen has been pretty swollen for a few
>days, but my weight keeps going down, I will hope he refers me to one,
>cause someone has to tell me more than some of my drs.
>
>do you htink he can help you?
>I am so tired of hurting, I go bac to pain clinic in a week, all they do
>is up the meds. Starting to help some, but of course not completely, as
>she said adhesion pain is hard to treat!
>
>I still care!
>
>Toni

Hi Toni:

Of course I will still talk to you! I'm sorry to hear that you are doing so lousy, what you describe does not sound good at all. It's also not fun thinking about your bowels all the time.

The colo-rectal guy is not going to do anything for me! He doesn't think the adhesions are causing my pain and I can't say that I blame him thinking that because I said the same thing to him! I really don't think they are doing it. I'm beginning to wonder if they ever were the problem. The pain now goes through to my back (still only on the right side) and out to the right hip and when he heard that he then told me about his wife who had the exact same symptoms and similar long, sad story. (doctor to doctor to doctor and her husband was a doctor. There's no hope for us if he couldn't get her problems solved) It turned out in her case she had an inflammation of her sacraliliac joint (where your hip bone joins the sacral area of your spine in the back) This can refer pain to the front. So he is recommending I see a rheumatologist and get a bone scan. I can't explain the gi symptoms. (neither could he) Maybe I have two problems and if I get rid of one the other one will be easier to either solve or deal with. Anyway, he didn't think there was any problem with the colon being in an odd location. He said that he sees colons that look like they are tied in knots. Of course, he could be wrong. I see my pcp on Monday and I will see what he suggests. I really don't want to go to another doctor but I do want the bone scan or something else that will investigate the spine.

Chris


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