Re: Sigh

From: toni welsh (welsh1@webtv.net)
Fri May 28 23:07:43 1999


At Fri, 28 May 1999, Helen from Chicago wrote: >
>I feel so bad when I read all of our posts. I am blessed thus far...my
>pain is bearable. I have had adhesions for 20 months so far. I had a
>surgery last August to separate them and of course, they are back.
>
>But so far, the pain is bearable...but its 9 months since surgery..but
>it also scares me that no one can figure out a method to deal with
>this!!
>
>But I would like to ask a general question. My adhesions returned..no
>doubt about that...I know theyre there. So the Interceed DIDNT work.
>But I honestly dont feel them getting worse...maybe they just progress
>slowly. They are kind of just there...pulling, and throbbing, burning.
>So I am wondering if over time, I will get to a terrible stage??? Can I
>expect to get worse? More surgery?? Did you all start out at a bearable
>stage and over time, get progressively worse? I would like to know what
>I am up against.
>
>My doctor says my adhesions are at the bottom of the
>ascending/descending colon and doesnt expect me to get
>obstructions...but of course, they're always the chance. He says I
>should just leave them alone..No more surgery. So far, I dont have
>problems with BMs. Because honestly, if I dont get worse over time..I
>could live my life with this...so far, I feel blessed...but I am scared
>of what my future COULD hold. I am not without pain or
>discomfort...because there is..I cant wear belts or jeans...too
>uncomfortable...but thankfully, its bearable.
>
>I am sorry to read such terrible stories of doctor's runarounds, waiting
>for doctor's appts, doctor's results, doctor's phonecalls, etc. I KNOW
>EXACTLY HOW ALL OF YOU FEEL. I cant think of anything worse...is to
>wait for THE CALL...
>
>Until I was diagnosed with adhesions...I went thru 10 months of DAILY
>DAILY hell, going from doctor to doctor, 3 ultrasounds, colonoscopies,
>nights laying aware in worry, tears..the fear, of what's wrong, who can
>help me..etc. I sympathisize SO much with us all. I dont post
>often..but I do read the boards daily..and I just feel so bad for us
>all. But at least, for right now, I have some kind of mental peace
>because at least I know what's wrong with me.
>
>I just wanted to share my thoughts and say we are all in this
>together...
>
>--
>Helen from Chicago
>

hello helen, I was told that ahesions do get worse over time, at least that is what my gyn tod me. I guess it different witheach person.

My pain was back almost a week after surgery, I told my husband after I got home and I was laying in my bed watching tv with him, I can feel them again, he looked at me sort of funny and I knew what i felt. When we went to see thegn to have te staples removed I told himm, and his first words were I was hoping you would not say that.

But after the gyn lysed the adhesons and removed last ovary that was so stuck to the omentun, and adhesions had pulled the entire bowel to the right, that was in april, he said they were very dense after four years(TAH), but even after the lap four months later, he called me the next day to tell me the entire pelvis what he could see was covered with adhesions, and they could only get the scope in just alittle to the right and he took down adhesions very few, the adhesions were too dense to get the scope in, and at that time the dr could not distinquish where my bowel was, so he had to schedule a laparotoy in latter sept, and that is when he found the mess. So my adhesions had gotten even worse in a period of 4 months. Now I am 8 months post op, and seeing a pain center for awhile, he said that is the only thing he can do for me until things settle down from all the surgery i had last year in 5 month period,and all I am doing now is trying to feel better!

Take care of yourself all of you, and I am goign to bed.

Toni


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