You have said the following so much better than I can, "the more educated one becomes to their own disorder, the better equipped they are to discuss treatment with a Dr...even down to what needs to be done in a surgery if you elect that route!" I totally agree with you!!
I am not sure what you meant when you said, "Helen, give me a back atcha if you will!"
Again, I would really like to hear more about your experience with adhesions and also about your adhesiolysis...either via the forum or by e-mail.
Thanks so much for sharing your experience! Adhesion-sufferers need to know that there is HOPE.
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At Sat, 5Jun 1999, Beverly J. Doucette wrote:
>OOPs...hit the wrong button!!!
>If a medical facility DID NOT perform medical tests on a patient
>presenting with complaints of pain and assumed that thier symptoms of
>pain WERE due to adhesions because they have a history of them, what
>would you do if you DID have a tumor or cancer, and it went undetected
>because of a DR. writing your pain off as due to adhesions without
>checking into it? I'd be pretty miffed!
>My recent contacts with Mayo Clinic indicated to me that a number of the
>DR.s DID in fact feel that adhesions in and of themselves caused pain.
>Like almost every where else though, they have not come up with a
>practical treatment or surgical procedure that would benefit an adhesion
>former. Mayo will work with an adhesion patient through pain
>management. I did start my pain management through them. I cannot see
>a basis for an " investigation" into Mayo or any other medical facility
>because they perform medical tests on those of us who have a history of
>adhesions. I was found to have TWO tumors....and that was only through
>an adhesional lysis that I elected to have done in New York under DR.
>Reich! If he had not found them, who knows what might have happenend to
>me. I would not allow any local DR's to perform anymore tests on me as
>I was convinced that ALL MY pain was from adhesions and that there was
>no valid reason to put myself through testing that would have negative
>results for abnormal pathology let alone pay for tests over and over
>again...boy was I wrong!!! So, I have to advise all, for what it's
>worth, the testing is necessary and could save yoour life! If all tests
>have negative results for abnormal pathology, then it is probably your
>adhesions. It is then up to you to determine the next step....surgery
>for them or live with them and try pain management. I do believe that
>the more educated one becomes to thier own disorder, the better equiped
>they are to discuss treatment with a DR...even down to what needs to be
>done in a surgery if you elect that route! I also feel that adhesional
>lysis performed in a certain way, CAN reduce the amount of reformed
>adhesions and in all probability, decrease the formation of DeNovo
>adhesions...I firmly believe that there are no barrier's created today
>that will be effective in dealing with adhesions..and I mean NONE! Once
>you learn what type of procedure is best for adhesional lysis, you can
>discuss it with your surgeon..even dictate how and what you wish to have
>done for you and this disorder! Helen, give me a back atcha if you wilL!