"The problem with the current strategies for managing chronic illness is that such strategies are typically initiated from the top down, by professional caregivers, such as physicians, nurses, etc. By definition, however, the chronically ill are not going to be cured by a miracle drug or treatment. Much medical research shows that those who are most successful in managing their chronic illness have undertaken to research their illness and to speak to and learn coping skills from others who have similar illnesses. These patients are not only among the most successful in their own rehabilitation, but they also are more compliant because they understand the purposes of the drugs and treatment they are prescribed. Patient noncompliance is a frequent stumbling block to successful rehabilitation.
"Those of us who are chronically ill need information and education. At a minimum, that information should include facts about our illness, explanations of treatment options, and descriptions of our medications, including side effects and interactions with other drugs. We also need up-to-date information about clinical studies and medical research that may impact us. We expect help from our healthcare providers in learning about our conditions.
"Equally important, however, to live successfully with a chronic illness, we need management skills and emotional support as we learn to cope with our long term illness. Even here, our doctors are in a good position to help us learn to cope since they have more experience than any one patient in the management of chronic illesses. The introduction of coping skills may be nothing more than facilitating interaction among patients in similar situations.
"In short, the physician to the chronically ill must play a dual role: first, that of traditional diagnostician and healer; and second, that of medical advisor and educator."
*TO BE CONTINUED*