Chris S.
At Thu, 19 Aug 1999, Ginny King wrote:
>
>Hey Chris,
>
>Dumb question but where is the right sacroilitus? Any connection to the
>sacrum? (As I have posted I have arthritis that has fused the lowest
>lumbar to the sacrum)which they say Crohn's can cause. Glad to see you
>back!! Ginny
>
>At Thu, 19 Aug 1999, Christine M. Smith wrote:
>>
>>At Mon, 16 Aug 1999, Ginny King wrote:
>>>
>>>Hey Chris,
>>>
>>>I haven't seen you post lately and I wanted to make sure you were OK.
>>>Let me know cause I miss hearing from you. Ginny
>>
>>Hi Ginny:
>>I had stayed away from the forum because I felt that no one really
>>wanted to hear that something else besides gyn problems/adhesions could
>>be causing their pelvic pain. It was extremely frustrating to me to
>>post (which I spent a long time doing-reading others posts/commenting
>>etc) and then only getting silence (for the most part) in return. I
>>really thought (and still do) that others should think of other
>>possibilities. I had (and could still have) terrible adhesions but it
>>appears that they had nothing (or very little) to do with my pain
>>problem. Believe me, staying away from the forum was extremely hard to
>>do which made me realize that it had become an important part of my
>>life. But I forced myself to. Then today I wanted to find Toni's
>>address so I checked in with the forum, read some posts, saw this post,
>>and here I am.
>>Well, the verdict seems to be in. I have arthritis of the spine and
>>right sacroilitis, cause unknown. The hypertrophied facet joints on the
>>MRI indicate the arthritis, the location of the pain the saccroilitis.
>>The doctor at the pain clinic said that sacroilitis is a very common
>>source of pelvic pain, which is what the colo-rectal guy had told me.
>>Why I got this, and so suddenly, 2 years ago is unknown. I had been
>>doing heavy gardening at the time (digging repeatedly with a spade with
>>my right leg)so perhaps I did something to the SI joint then and never
>>gave it time to heal. Then when I did the step arobics this Spring I
>>aggravated it again. The PT therapist said that step aerobics is one
>>way to give you an SI problem if you don't already have one. (apparently
>>SI problems are quite common, but its uncommon for them to cause *only*
>>pelvic pain for so long, so in a way it is good I took the step aerobics
>>as it seems to have brought the problem to a head)
>>Why I got relief after each lap for 3-4 months each time is a mystery.
>>But that's the time an injection into the area often gives relief for,
>>so there could be some explanation.
>>Even my pcp is convinced and up until very recently was insisting it was
>>an adhesion/bowel problem.
>>I will continue on the celebrex for 6 weeks. It helps but does not
>>eliminate entirely the pain, but I feel pretty good. Just having an
>>answer helps tremendously! The pcp said it will take awhile to go away
>>if it is the SI joint. If in 6 weeks I haven't noticably improved I
>>will ask about the injections into the SI joint.
>>Why I have this inflammation is still unknown. As I said before it
>>could have been caused by the gardening, or I could have a systemic
>>disease with an unusual presentation. (like crohn's) I do have other
>>abnormalities like the "chronic immune process" that showed up on my
>>immunoglobulin titer. (which I've had for at least 25 years) Maybe in
>>the future I will find out but right now all I can do is manage the
>>symptoms.
>>I was glad to read that you are getting along with your pcp better. I'm
>>still not thrilled with my pcp office, but I'm going to hold off awhile
>>making any changes.
>>
>>Chris S.