To much fiber can be bad news for Crohn's. You need it when you are not in an active state, but need to back way off when it is active. As we have discussed before, I have had problems with the fever, chills etc which my new GI (and yes you are right, she is not the one who did the colonoscopy and was very angry when she found out the doctor who did the tst had not followed up with me) says can be related to Crohn's. I also gather that with Crohn's the pain can be in different places because it moves around and can attack different places each time. And as you have pointed out to me, can make it very difficult to diagnose. I'm no doctor but your symptons sound so familar I would not rule out Crohn's. Keep pressing on. Is the Celebrex you are taking an anti-inflammatory? If it is then maybe it is giving you relief from the arthritis and from inflammation of the bowel as well? Best wishes. Ginny
At Thu, 19 Aug 1999, Christine M. Smith wrote:
>
>Hi Ginny:
>Wow-that's amazing that your doctor said that lupron can help IBD. It
>definitely did help me, whatever the cause of my pain was. I think two
>years ago the add back theory had *just* came out. When I had it (Fall
>of 1997) my doctor spoke as if it was very new. By the way, the gyn
>that did all this for me just recently died. Remember I said he left
>his practice earlier this year because of illness?
>Looking back, I can see so many things that are convi ncing me that I
>might possibly have crohn's. When this problem started two years ago,
>it was much different than what it has turned out to be. In the
>beginning, it felt exactly like menstrual pain-bilateral lower abdominal
>pain. My gyn said that most menstrual pain is really bowel pain. That
>night I had a fever and shaking chills. Then this past March when I had
>the fiber related problems, I thought I had a bowel obstruction. That
>time too I had a fever and shaking chills. These last a few hours and
>then I recover. This has not happened since I returned to my normal
>amount of dietary fiber.
> Well, I guess time will tell! (maybe)
>
>Chris S.
>
>At Thu, 19 Aug 1999, Ginny King wrote:
>>
>>Chris,
>>
>>I just did the Lupron two yers ago. I wonder why they did not recommend
>>the add back estrogen. I think that would have made dealing with the
>>side effects much easier. I don't know why it helped your pain, but it
>>did mine as well. Of course at the time I had not had the hysterectomy
>>and my periods were so painful that stopping them did help, but not the
>>pain in my side or the symtoms that I now know were caused by Crohn's.
>>My GI did say that Lupron can help with IBD and IBS so maybe that is why
>>you got some relief. Still sounds like you have something else brewing
>>in there. Ginny
>>
>>At Thu, 19 Aug 1999, Christine M. Smith wrote:
>>>
>>>Hi Ginny:
>>>I saw your post about Lupron. I took Lupron for 6 months . It was
>>>supposed to be treating endo which was supposed to be causing the leg
>>>pain I had and was treated for four years by a neurologist with
>>>imipramine! Now I am wondering what exactly was causing the leg pain
>>>(now that I know about my discs) and if it wasn't endo, why did the
>>>Lupron work so well. Three months into the treatment I was pain free
>>>and remained that way for 1 1/2 years until this current problem flared.
>>>I felt fine on Lupron, although I had severe hot flashes (at least I
>>>think they were severe) No other symptoms. They give "add back
>>>estrogen" now with Lupron to combat these symptoms. When this current
>>>problem flared my gyn suggested a 3 month trial again, this time with
>>>the add back estrogen, and I had no hot flashes. It also had no effect
>>>on my pain. I sure hope the Lupron did not cause or aggravate my
>>>present problem.
>>>
>>>Chris S.