When are you leaving? I'm sure gonna miss you. Here it is another Friday night, I closed the biggest deal of my career today and my daughter is out on a date and my husband went on a "boys weekend out". So I am all alone, in pain and feeling sorry for myself. Oh Well... I do not usually have ulcers in my mouth, just burning. When it really burns for several days straight the top layer of skin in my entire mouth will just peel off in large sections almost like a sunburn. Not even my new GI has an explaination for this, everyone just shrugs their shoulders. When I read through my past reports I saw where two of my doctors noted that I made this complaint and stated that they did not feel this was relative to what was wrong with me. I thought this was very interesting as this was during the time they told me they did not know what was wrong with me, so how could they be so sure it's not related!!! As for the burning eyes, I'm not sure if it's the Crohn's as it seems to be at it's worst when my blood sugar is very low. Of course my blood sugar is always off when I am in an active state of Crohn's. So is it the chicken or the egg? Yes the pain is bad in the morning. I look like I'm eighty years old when I try to get started. It's been bad lately since I can't seem to get my ankle to heal from where I fainted earlier this summer and twisted it. I'm afraid I may have done more damage to it htan just a sprain but I have not even brought it up to my PCP because I'm embarrased. I still play tennis (even with the ankle, I just brace it then ice it when I get home) I have given up singles, running, and my step classes. I just hate to give something I enjoy as I have given up on so much. I have cut back though and don't play as often in competetive tournaments. I'm also not sure I can keep up with the Remeron they gave me. It seems like I am going through more episodes of depression and anxiety than before,not to mention several other side effects. It seems that if a drug has a side effect, I experience it. I hope you have a wonderful trip and look forward to hearing all about it when you return. Best wishes. Ginny
At Thu, 26 Aug 1999, Christine M. Smith wrote:
>
>At Thu, 26 Aug 1999, Ginny King wrote:
>>
>>At Thu, 26 Aug 1999, Christine M. Smith wrote:
>>>
>o
>
>>Hi Chris. Yes I have eye problems. I have had conjunctivitis on two
>>occasions. Other times I have had eye pain and most other times they
>>just feel irritated, amost a burning like I have in my mouth and they
>>are very blood shot when this happens. I always feel great after I have
>>had a bowel prep (except for the actual act of getting there) After both
>>colonoscopy's I was pain free for three to four days and have more
>>energy. I know what you mean about the medications. I have extra
>>trouble because I need nutritional supplements and it's hard to lay out
>>six or more pills and think about taking all of them, but I guess we
>>need to. I would like to think I could get this under control without
>>taking a heavy narcotic. I don't know about the bananas. Maybe they
>>are not ripe enough when she eats them. Bananas seem to be listed as ok
>>in most of the documentation I have read. I still agree with you that
>>something else is going on with you besides the SI pain and adhesions
>>otherwise I would not think you would get relief after a prep and you
>>would not have the other symtoms you are describing. Best wishes. Ginny
>
>Hi Ginny:
>Yes, a burning feeling describes it very well. That's what I have in my
>mouth also, even when I don't have active ulcers. I usually don't have
>them since I started lysine. I also can only use one kind of
>toothpaste-store brand baking soda brand. Rembrandt has a SLS-free
>toothpaste but the stores around here stopped carrying it. The sodium
>lauryl sulfate (SLS) seems to aggravate the burning and causes canker
>sores in some people.
>Do you have a lot of pain when you wake up in the morning? This is one
>thing that is 100% gone with me on celebrex and it is wonderful. I
>don't know if it was my back or what, but I would wake up in severe
>pain, stand up and be better. That brought some really strange looks
>when I reported that-except from my pcp who said it could point to the
>lumbar spine. But the colo-rectal doctor also asked me if I woke up in
>pain but did not elaborate when I said yes, I did.
>I meant to comment on something you said about tennis-do you always have
>pain after playing? I would think if you have spinal arthritis, tennis,
>which I think is considered high impact, would cause you a lot of pain.
>The PT guy told me that aerobics, especially step aerobics, would be one
>way to get an SI problem if you don't have one. I didnt have this SI
>problem before the aerobics, at least not that I was aware of. When I
>get back from my vacation I'm going to bring up the crohn's possibility
>to my pcp when I see him.
>
>Chris